NATIONAL CHILDHOOD CANCER REGISTRY (NCCR)

国家儿童癌症登记处 (NCCR)

• 批准号: 10834816
• 负责人: BETSY KOHLER
• 金额: $ 129.5万
• 依托单位: NORTH AMERICAN ASSN/CENTRAL CANCER REG
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-01 至 2023-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10834816
• 关键词: Malignant Childhood Neoplasm; neoplasm registry

NATIONAL CHILDHOOD CANCER REGISTRY (NCCR): The National Childhood Cancer Registry (NCCR) is envisioned as a connected data infrastructure to enable sharing of childhood cancer data from multiple and heterogeneous data sources. Incorporating available data on genomic and tumor characterization, residential history, social determinants of health and measures of financial toxicity, longitudinal treatments including oral agents, and longitudinal outcomes data including recurrence and subsequent cancers can enhance the core infrastructure of registry data on pediatric patients.

国家儿童癌症登记处(NCCR)：国家儿童癌症登记处(NCCR)被设想为一个互联的数据基础设施，以实现来自多个不同数据源的儿童癌症数据的共享。纳入关于基因组和肿瘤特征、居住史、健康的社会决定因素和金融毒性措施的现有数据、包括口服药物在内的纵向治疗以及包括复发和后续癌症在内的纵向结果数据，可以加强儿科患者登记数据的核心基础设施。