ALZHEIMER'S CAREGIVERS RATING OF COMMUNICATION AND COPING BEHAVIOR

这个子项目是许多研究子项目中利用 资源由NIH/NCRR资助的中心拨款提供。子项目和 调查员(PI)可能从NIH的另一个来源获得了主要资金， 并因此可以在其他清晰的条目中表示。列出的机构是 该中心不一定是调查人员的机构。 沟通问题是阿尔茨海默病(AD)患者及其照顾者面临的最困难的问题之一。它增加了AD照顾者和照顾者的压力，增加了死亡率，降低了生活质量。尽管有大量关于照顾者负担和应对的文献，但关于阿尔茨海默病患者一般如何应对，特别是他们如何应对沟通问题的研究很少。 文献表明，随着认知障碍的进展，阿尔茨海默病患者对应对策略的需求增加。目前的认知测试既不寻找也不归功于应对行为，因此可能会遗漏功能性行为的重要迹象。因此，我们建议通过开发一种名为交往应对行为检查表(CCBC)的新工具来检查AD患者的这些行为。 拟议的清单将衡量70对由正常或AD患者及其照顾者组成的夫妇对沟通应对行为的频率和有效性进行评估。在这项研究中，照顾者或见多识广的告密者将观察和评估沟通应对行为，间隔两周，两年两次。 这项研究的长期目标是识别和强调AD的沟通应对行为，并最终通过意识和康复来改善AD照顾者和照顾者的沟通和生活质量。

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. Communication problems are one of the most difficult issues faced by people with Alzheimer's Disease (AD) and their caregivers. It contributes to increased stress, mortality, and decreased quality of life for both AD caregivers and care-receivers. Despite a large literature on caregiver burden and coping, little research has been done on how people with AD cope in general and in particular how they cope with communication problems. The literature suggests that as cognitive impairment progresses, the need for coping strategies by the person with AD increases. Current cognitive tests neither look for nor give credit to coping behaviors and thus may miss important signs of functional behavior. Thus we propose to examine these behaviors of persons with AD by developing a new instrument called the Communicative Coping Behavior Checklist (CCBC). The proposed checklist will measure the frequency and effectiveness of communicative coping behaviors as rated by 70 couples comprised of normal or persons with AD and their caregivers. For this study, the caregivers or knowledgeable informants will observe and rate communicative coping behaviors for a two week interval, twice in two years. The long-term goal of this research program is to identify and highlight AD communicative coping behaviors and ultimately to improve communication and the quality of life of AD caregivers and care-receivers through awareness and rehabilitation.