Admin Unit

行政单位 行政股负责协调和支持CREATE联盟的所有活动，使该RDCRC能够实现其科学、教育和社区参与目标。行政单位将建立在五个临床卓越中心(迈阿密、梅奥、堪萨斯、加州大学旧金山分校和加州大学洛杉矶分校)诊断和治疗ALS及相关疾病的现有基础设施、这些机构通过临床转化科学奖(CTSA)提供的资源、我们成员(迈阿密、圣裘德、梅奥)的专业知识和大量的基因组和生物信息学专业知识、我们与各种相关患者倡导团体(PAG)长期合作的历史，以及我们致力于患者教育、外联和倡导的承诺。我们还与国家肌萎缩侧索硬化症注册中心(美国)、安大略省神经退行性研究倡议(加拿大)和力量联盟(欧洲)建立了新的合作伙伴关系，以形成一个拥有集体资源的国际联盟，以有意义地影响肌萎缩侧索硬化症和相关疾病的研究。

ADMINISTRATIVE UNIT The Administrative Unit is responsible for coordinating and supporting all activities of the CREATE Consortium, to enable this RDCRC to achieve its scientific, educational and community engagement goals. The Administrative Unit will build on the existing infrastructure of five clinical centers of excellence for the diagnosis and treatment of patients with ALS and related disorders (Miami, Mayo, Kansas, UCSF and UCSD), the resources available through Clinical Translational Science Awards (CTSAs) at each of these institutions, the expertise and considerable genomic and bioinformatics expertise of our members (Miami, St. Jude, Mayo), our long history of collaboration with a diverse array of relevant patient advocacy groups (PAGs), and our engaged commitment to patient education, outreach and advocacy. We have also established new partnerships with the National ALS Registry (USA), the Ontario Neurodegenerative Research Initiative (Canada) and the STRENGTH Consortium (Europe) to form an international alliance with the collective resources to meaningfully impact ALS and related disorder research.