Legacy Project - Diversity Supplement

遗留项目 - 多样性补充

• 批准号: 10377837
• 负责人: Matthew P Banegas
• 金额: $ 24.35万
• 依托单位: KAISER FOUNDATION RESEARCH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10377837
• 关键词: Advanced Malignant Neoplasm; Applications Grants; Cancer Patient; Caregivers; Caring; Cessation of life; Clinical; Continuity of Patient Care; Data; Decision Making; Diagnosis; Dimensions; Disease; Distress; Emotional; Faculty; Family Caregiver; Family Process; Family Study; Family member; Financial Hardship; First Generation College Students; Foundations; Future; Goals; Health; Healthcare; Human; Intervention; Interview; Lead; Literature; Malignant Neoplasms; Medical; Medical Care Costs; Mentors; Minority Groups; Modeling; Palliative Care; Pathway interactions; Patient-Centered Care; Patients; Play; Process; Provider; Quality of life; Regrets; Reporting; Research; Research Institute; Research Project Grants; Review Literature; Role; Structure; Testing; Thinking; Time; Treatment Cost; Treatment Effectiveness; Underrepresented Minority; Ursidae Family; Washington; Work; cancer care; cancer therapy; care providers; caregiving; cost; depressive symptoms; design; end of life; end of life care; experience; immunotherapy clinical trials; improved; insight; intervention participants; loved ones; member; parent grant; patient engagement; patient oriented; quality of death; side effect; treatment choice

Project Summary: Legacy – what one leaves behind and how one hopes to be remembered after death— is an important part of the human experience. In the parent grant, our related preliminary work, we have encountered multiple anecdotal reports from people considering their legacy as they make cancer treatment choices, suggesting that legacy has a clear financial component and is relevant to understanding cancer-related financial hardship. However, very limited research exists about legacy planning as it relates to cancer care. Deeper understanding of the legacy construct and how it relates to cancer-related financial hardship and treatment choices could guide how to incorporate legacy considerations into financial navigation interventions like the one in the parent grant. This supplemental study will examine how people with cancer consider legacy, both in general and when making medical decisions, with focus on the financial aspects of legacy. Through a critical literature review and semi-structured interviews with cancer patients and their families, this study will build a conceptual model and preliminary data that will inform a future R01-level (or equivalent) research grant proposal led by Dr. Marlaine Figueroa Gray, junior faculty member, first generation college graduate, and member of an underrepresented minority group, at Kaiser Permanente Washington Health Research Institute.

项目概要： 遗产——一个人留下了什么以及一个人希望在死后如何被铭记——是一个重要的组成部分 人类的经验。在家长资助方面，我们的相关前期工作中，我们遇到了多个 人们在做出癌症治疗选择时考虑自己的遗产的轶事报告表明， 遗产具有明确的财务成分，并且与了解与癌症相关的财务困难有关。 然而，关于与癌症护理相关的遗产规划的研究非常有限。更深入的了解 遗留结构及其与癌症相关的经济困难和治疗选择的关系可以 指导如何将遗留考虑因素纳入财务导航干预措施中，如母公司中的干预措施 授予。这项补充研究将探讨癌症患者如何看待遗产，包括一般情况和何时 做出医疗决策，重点关注遗产的财务方面。通过批判性文献回顾和 通过对癌症患者及其家人的半结构化访谈，本研究将建立一个概念模型并 初步数据将为 Marlaine 博士领导的未来 R01 级（或同等）研究资助提案提供信息 Figueroa Gray，初级教员，第一代大学毕业生，代表性不足的成员 凯撒永久华盛顿健康研究所的少数群体。