Children's Tumor Foundation 2015 Neurofibromatosis (NF) Conference

儿童肿瘤基金会2015年神经纤维瘤病（NF）会议

• 批准号: 8986147
• 负责人: JAISHRI O. BLAKELEY
• 金额: $ 1万
• 依托单位: CHILDREN'S TUMOR FOUNDATION
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-06-08 至 2016-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8986147
• 关键词: Address; Award; Basic Science; Biology; Child; Clinic; Clinical; Clinical Management; Clinical Research; Clinical Sciences; Clinical Trials; Clinical Trials Design; Collaborations; Communities; Complex; Consensus; DNA Sequence Alteration; Data; Development; Diagnosis; Diagnostic; Discipline; Disease; Education; Educational workshop; Evaluation; Event; Feeds; Fostering; Foundations; Functional disorder; Funding; Future; Genetic; Guidelines; Health; International; Laboratories; Manuscripts; Medical Research; Mentors; Mentorship; Morbidity - disease rate; Neurofibromatoses; Neurofibromatosis 1; Newsletter; Nurses; Outcome; Participant; Pathway interactions; Patients; Peer Review; Physicians; Publications; Published Comment; Publishing; Recommendation; Registries; Reporting; Request for Applications; Research; Research Personnel; Schwannomatosis; Science; Scientist; Summary Reports; Syndrome; Therapeutic; Translational Research; Vertebral column; career development; clinical care; clinical practice; design; genetic counselor; improved; interest; lectures; meetings; mortality; neurogenetics; new growth; posters; programs; response; social; symposium; tool; tumor; web site

 DESCRIPTION (provided by applicant): The Neurofibromatosis (NF) Conference is recognized as the premier annual scholarly gathering of international NF researchers and physicians. The Conference is organized by the Children's Tumor Foundation and thought leaders in the fields of neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis. The agenda of the conference is designed to provide education about best clinical practices for these rare genetic tumor syndromes, opportunities to share major advances in research and sessions that support the development of new collaborations and the growth of new investigators. The research landscape in NF1, NF2 and schwannomatosis has been remarkably dynamic in the last 5 years and this conference is a critical venue for the presentation and integration of basic science discovery, translational data and outcomes from clinical trials in a meaningful way to both enhance the quality of ongoing research and improve current clinical care. Children's Tumor Foundation: 2015 NF Conference PI: Jaishri Blakeley, MD

 描述（由申请人提供）：神经纤维瘤病（NF）会议被公认为国际NF研究人员和医生的首要年度学术聚会。该会议由儿童肿瘤基金会和1型神经纤维瘤病（NF1），2型神经纤维瘤病（NF2）和神经鞘瘤病领域的思想领袖组织。会议的议程旨在为这些罕见的遗传性肿瘤综合征提供有关最佳临床实践的教育，分享研究重大进展的机会，以及支持新合作发展和新研究者成长的会议。NF1，NF2和神经鞘瘤病的研究景观在过去5年中一直非常活跃，本次会议是以有意义的方式展示和整合基础科学发现，转化数据和临床试验结果的重要场所，以提高正在进行的研究的质量并改善当前的临床护理。儿童肿瘤基金会：2015年NF会议PI：Jaishri Blaiden，MD