iCanConnect: Using mHealth to Connect Physically Disabled Breast Cancer Patients with Matched Disabled Survivors

项目总结/摘要 背景：癌症及其治疗可显著影响健康相关生活质量（HRQOL）， 包括社会心理压力这对于患有乳腺癌的残疾人来说尤其如此， 健康差距未得到承认的人口已经生活在健康边缘。人与 预先存在的残疾和乳腺癌的双重打击， 幸福和HRQOL。一对一的同伴支持已被证明是解决所需问题的有效方法。 支持和量身定制的移动医疗技术可能提供一个可行的解决方案。目的：建立和试点测试一个 一个名为“iCanConnect”的新的移动健康支持工具，它将使妇女之间能够进行一对一的同行支持 最近被诊断患有乳腺癌的身体残疾者（学员）， 癌症幸存者同伴（导师）。“I”代表信息学成分，“can”代表癌症和 能力，而“连接”是工具的目的。本研究的目的是检查的初步疗效， 这种支持工具可以改善心理健康，社会联系，治疗决策 支持，和HRQOL的妇女与现有的身体残疾谁最近被诊断为 乳腺癌研究设计：我们将分4个不同的阶段进行研究：在第1阶段，我们将 发展研究人员和项目的协作能力，以便我们获得技能和发展 组织机构来开展这项工作。在第二阶段，我们将让残疾和癌症 社区.这包括文献综述、专家访谈（n=8）和患者焦点小组（n=30）， 目的是探讨病人对支援服务的喜好和需要，以及 mHealth使用。在第3阶段，我们将根据收集的信息制定iCanConnect干预措施 从文献回顾、专家访谈和焦点小组中。我们将进行可用性测试（n=10）并使用 反馈，以开发更完整的原型，并在小型beta研究中进行测试（n=10）。最后，我们将试点 用一小部分既存身体残疾的妇女（n=40）混合样本测试完整的工具， 最近被诊断患有癌症，以检查其可行性，可用性，接受度和满意度。

PROJECT SUMMARY/ABSTRACT BACKGROUND: Cancer and its treatment can significantly impact health-related quality of life (HRQOL), including psychosocial distress. This is particularly true for people with disabilities with breast cancer, an unrecognized health disparities population who already live with a thinner margin of health. People with the double whammy of pre-existing disability and breast cancer are at even greater risk for decreased physical well-being and HRQOL. One-to-one peer support has shown to be an effective way to address needed supports, and tailored mHealth technologies may offer a viable solution. OBJECTIVE: To build and pilot test a new mHealth support tool called “iCanConnect”, which will enable one-to-one peer support between women with physical disabilities who recently have been diagnosed with breast cancer (mentees) with matched breast cancer survivor peers (mentors). “I” represents the informatics component, “can” represents both cancer and ability, and “connect” is the purpose of the tool The goal of this study is to examine the preliminary efficacy of this support tool to improve the psychosocial wellbeing, social connectedness, treatment decision-making support, and HRQOL of women with existing physical disabilities who have been recently diagnosed with breast cancer. STUDY DESIGN: We will conduct our study in 4 distinct phases: During Phase 1, we will develop the collaborative capacity of the investigators and programs so that we acquire the skills and develop the organizational structure to conduct this work. During Phase 2, we will engage the disability and cancer communities. This includes a literature review, expert interviews (n=8), and patient focus groups (n=30) with the purpose exploring patient preferences and needs for supportive services, as well as potential barriers to mHealth use. During Phase 3, we will develop the iCanConnect intervention based on information gathered from the literature review, expert interviews, and focus groups. We will conduct usability test (n=10) and use the feedback to develop a more complete prototype to test in a small beta study (n=10). Finally, we will pilot test the complete tool with a small mixed sample of women (n=40) with pre-existing physical disabilities and recently diagnosed with cancer, to examine its feasibility, usability, acceptance, and satisfaction.