Exploring the needs for a web-based decision aid and support tool for guardians of infant females presenting with congenital adrenal hyperplasia

探索先天性肾上腺增生女婴监护人对基于网络的决策辅助和支持工具的需求

• 批准号: 367360
• 负责人: Tahir Irtaza
• 金额: $ 1.27万
• 依托单位: McMaster University
• 依托单位国家: 加拿大
• 项目类别: Studentship Programs
• 财政年份: 2016
• 资助国家: 加拿大
• 起止时间: 2016-12-01 至 2017-12-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=367360&lang=en
• 关键词: Congenital Adrenal Hyperplasia; Decision Aid And Support Tool; Disorders Of Sex Developement; Ehealth; Information Requirements Specification; Informed Consent; Needs And Gaps Analyses; Pediatric Urology; Shared Decision Making; User Requirements

Congenital adrenal hyperplasia (CAH), a disorder of sex development, occurs when an infant born with “normal” chromosomes inherits an enzyme deficiency that affects how hormones are made. This deficiency causes infants to become expose

先天性肾上腺增生症（CAH）是一种性发育障碍，当出生时染色体正常的婴儿遗传了一种影响激素合成的酶缺乏症时，就会发生这种疾病。这种缺乏导致婴儿成为暴露