探索先天性肾上腺增生女婴监护人对基于网络的决策辅助和支持工具的需求-猫眼课题宝

探索先天性肾上腺增生女婴监护人对基于网络的决策辅助和支持工具的需求

批准号：

367360

负责人：

Tahir Irtaza

金额：

$1.27万

依托单位：

McMaster University

依托单位国家：

加拿大

项目类别：

Studentship Programs

财政年份：

2016

资助国家：

加拿大

项目状态：

已结题

起止时间：

2016-12-01 至 2017-12-01

来源：

https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=367360&lang=en

关键词：

Congenital Adrenal Hyperplasia Decision Aid And Support Tool Disorders Of Sex Developement Ehealth Information Requirements Specification Informed Consent Needs And Gaps Analyses Pediatric Urology Shared Decision Making User Requirements

中文摘要

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英文摘要

Congenital adrenal hyperplasia (CAH), a disorder of sex development, occurs when an infant born with &ldquo;normal&rdquo; chromosomes inherits an enzyme deficiency that affects how hormones are made. This deficiency causes infants to become expose

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Exploring the needs for a web-based decision aid and support tool for guardians of infant females presenting with congenital adrenal hyperplasia

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