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Exploring low-income family caregivers’ experiences of accessing health care services for children with inborn errors of metabolism

Exploring low-income family caregivers’ experiences of accessing health care services for children with inborn errors of metabolism
探索低收入家庭照顾者为患有先天性代谢缺陷的儿童获得医疗保健服务的经验
批准号：
449773
负责人：
Chimney Katherine
金额：
$1.27万
依托单位：
University of Manitoba
依托单位国家：
加拿大
项目类别：
Studentship Programs
财政年份：
2020
资助国家：
加拿大
项目状态：
已结题
起止时间：
2020-12-01 至 2021-12-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=449773&lang=en
关键词：
Family Caregiving Genetics Healthcare Access Healthcare Services Inborn Errors Of Metabolism Metabolic Disorders Metabolic Services

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中文摘要
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英文摘要
Inborn errors of metabolism (IEMs) are a diverse group of genetic diseases that commonly require frequent visits to medical professionals and may be life-threatening. These diseases have been shown to impact the physical, emotional, social, and financial
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Journal of Genetics and Genomics