Community-based research in AIDS-service organizations: what helps and what doesn't?
Community-based research in AIDS-service organizations: what helps and what doesn't?
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DOI：
10.1080/09540120802032650
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发表时间：
2009-01-01
影响因子：
1.7
通讯作者：
Rourke, Sean B.
中科院分区：
文献类型：
--
作者：
Flicker, Sarah;Wilson, Michael;Rourke, Sean B.
背景。基于社区的研究 (CBR) 方法在许多北美艾滋病毒社区中已变得司空见惯。在许多大城市中心，艾滋病服务组织 (ASO) 已成为活跃的研究中心，倡导在社区环境中提供研究资金。虽然 ASO 历来将当地知识融入其预防、护理和宣传举措中，但许多 ASO 现在正在发起或合作开展研究，以解决客户在实践中遇到的新问题。目标。调查 ASO 参与社区康复的障碍和促进因素。方法。我们对加拿大安大略省 ASO 的执行董事和 CBR 协调员进行了一项调查 (n=39) 和一对一的半结构化电话访谈 (n=25)。该调查询问了四个主要关注领域（组织人口统计、ASO CBR 活动、CBR 参与的潜在障碍和促进因素，以及利益相关者在 CBR 计划中扮演的角色）。访谈的重点是更深入地探讨这些问题，以及了解艾滋病毒/艾滋病患者参与社区康复的障碍和促进因素。结果。安大略省的 ASO 在其组织中适度支持社区康复。然而，我们的调查和一对一访谈表明，资金和组织资源既是 ASO 参与社区康复项目的重要障碍，也是促进因素。获得研究伦理委员会的准入以及对社区康复结果不会被采取行动的担忧也成为社区康复的障碍，特别是在获得资金和组织资源后。旨在提高研究团队成员技能的举措成为另一个重要的促进因素。结论。项目资助者越来越重视更严格的评估和问责制，再加上越来越多的社区要求在制定研究议程方面发挥更积极的作用，这意味着社区康复很可能会继续存在。消除障碍和促进因素将有助于增强 ASO 在社区康复中的参与。
Background. Community-based research (CBR) approaches have become commonplace in many North American HIV communities. In many large urban centers, AIDS-service organizations (ASOs) have become active research hubs, advocating for research dollars in community settings. While ASOs have historically integrated local knowledge into their prevention, care and advocacy initiatives, many are now initiating or collaborating in research which addresses emerging issues encountered in practice with clients. Objectives. To investigate barriers and facilitating factors for ASO engagement in CBR. Methods. We conducted a survey (n=39) and one-on-one semi-structured telephone interviews (n=25) with executive directors and CBR coordinators from ASOs in Ontario, Canada. The survey queried four major areas of interest (organizational demographics, ASO CBR activities, potential barriers and facilitators for CBR engagement, and what roles stakeholders play in CBR initiatives). The interviews focused on exploring these issues in greater depth as well as understanding barriers and facilitating factors to people living with HIV/AIDS engaging in CBR. Results. ASOs in Ontario are moderately supportive of CBR in their organizations. However, our survey and one-on-one interviews indicate that funding and organizational resources are both important barriers and facilitators to ASO involvement in CBR projects. Attaining access to research ethics boards and concerns that CBR results will not be acted upon also emerged as barriers to CBR, particularly once funds and organizational resources have been attained. Initiatives designed to enhance the skills of research team members emerged as an another important facilitator. Conclusion. Increasing emphasis from program funders on more rigorous evaluation and accountability, coupled with pull from increasingly empowered communities demanding much more active roles in setting research agendas, means that CBR is likely here to stay. Attending to barriers and facilitators will help with enhanced ASO engagement in CBR.