Satisfaction with information and unmet information needs in men and women with cancer
Satisfaction with information and unmet information needs in men and women with cancer
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DOI：
10.1007/s11764-015-0451-1
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发表时间：
2016-02-01
影响因子：
3.7
通讯作者：
Mehnert, Anja
中科院分区：
文献类型：
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作者：
Faller, Hermann;Koch, Uwe;Mehnert, Anja
癌症患者对信息的需求很高，但往往得不到满足。本研究的目的是检查的水平感知信息，信息满意度和未满足的需求在一个大样本的癌症患者。此外，我们还探讨了性别与情绪困扰和生活质量的关系。在德国的一项多中心横断面研究中，评估了4020名癌症患者（平均年龄58岁，51%为女性）。我们获得了信息水平、信息满意度和未满足需求的自我报告，用患者健康问卷（PHQ-9）测量抑郁症状，用广泛性焦虑障碍量表（GAD-7）测量焦虑症状，用欧洲癌症研究和治疗组织生活质量问卷核心30 （EORTC QLQ-C30）测量与健康相关的生活质量。72%至88%的参与者报告说，除了心理支持（38%）外，他们对自己疾病的各个方面都了解得很清楚。然而，未满足的信息需求也普遍存在，占36%至48%。发现的性别差异通常很小。虽然男性对心理支持的了解较少，但他们对这一主题的进一步信息的需求较少。不论性别，对所收到的信息满意度较低、未满足需求较多的患者报告焦虑、抑郁和生活质量较低。多达四分之三被列为最严重痛苦的人报告说，他们对心理支持信息的需求没有得到满足。在这项迄今为止规模最大的研究中，我们发现信息接收和对信息的满意度都很高，但也有相当数量的未满足需求，特别是在心理支持方面。提供有关心理社会支持的信息似乎对增加对痛苦的癌症幸存者提供的支持的利用很重要。
Information needs in cancer patients are high but often not fulfilled. This study aimed to examine the level of perceived information, information satisfaction, and unmet needs in a large sample of cancer patients. Further, we explored associations with emotional distress and quality of life accounting for gender.In a multicenter, cross-sectional study in Germany, 4020 cancer patients (mean age 58 years, 51 % women) were evaluated. We obtained self-reports of information level, information satisfaction, and unmet needs, measured depressive symptoms with the Patient Health Questionnaire (PHQ-9), symptoms of anxiety with the Generalized Anxiety Disorder Scale (GAD-7), and health-related quality of life with the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (EORTC QLQ-C30).Seventy-two to 88 % of participants reported to be well informed regarding various aspects of their disease, except of psychological support (38 %). However, unmet information needs were also prevalent in 36 to 48 %. Gender differences found were generally small. Although men felt less informed about psychological support, they expressed fewer needs for further information regarding this topic. Irrespective of gender, patients who were less satisfied with information received and had more unmet needs reported more anxiety, depression, and lower quality of life. Up to three quarters of those classified as most severely distressed reported unmet needs for information about psychological support.In this largest study to date, we found high levels of both information received and satisfaction with information, but also considerable amounts of unmet needs, particularly regarding psychological support.Provision of information about psychosocial support seems important to increase utilization of support offers among distressed cancer survivors.