The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): Development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer
The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): Development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer
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DOI：
10.1016/j.ejca.2011.09.010
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发表时间：
2012-04-01
影响因子：
8.4
通讯作者：
Auquier, Pascal
中科院分区：
文献类型：
--
作者：
Minaya, Patricia;Baumstarck, Karine;Auquier, Pascal
目的：本研究的目的是验证一个特定的生活质量（QoL）问卷的照顾者的癌症患者，照顾者肿瘤的生活质量问卷（CarGOQoL），基于独家观点的carefuls.Materials和方法：一个75项问卷内容分析访谈产生的照顾者是由837照顾者的癌症患者自我完成。除了社会人口学数据和患者特征，自我报告的问卷调查评估生活质量，负担，应对和社会支持的收集。Psychometric properties相结合的方法依赖于经典的测试理论和项目反应theorety.Results：最后29个项目选择评估10个维度：心理健康，负担，与医疗保健，行政和财务，应对，身体健康，自尊，闲暇时间，社会支持和私人生活的关系，他们被隔离的主成分分析解释总方差的73%。缺失数据和下限效应较低。发现B（34%）存在一些天花板效应。Cronbach的α系数范围为0.72至0.89，除了私人生活（PL）（0.55）。Rasch分析证实了尺度的一维性。与其他仪器的相关性证实了孤立的内容和显着的链接被发现与患者的特征。结论：CarGOQoL可以提供一个可靠和有效的措施照顾者的癌症患者的生活质量，这是关键演员在提供医疗保健。(C)2011爱思唯尔有限公司保留所有权利。
Purpose: The study objective was to validate a specific quality of life (QoL) questionnaire for caregivers of cancer patients, the CareGiver Oncology Quality of Life questionnaire (CarGOQoL), based on the exclusive points of view of the caregivers.Materials and methods: A 75-item questionnaire generated from content analysis of interviews with caregivers was self-completed by 837 caregivers of cancer patients. In addition to sociodemographic data and patient characteristics, self-reported questionnaires assessing QoL, burden, coping and social support were collected. Psychometric properties combined methods relying on both classical test theory and item response theory.Results: The final 29 items selected assessed 10 dimensions: psychological well-being, burden, relationship with health care, administration and finances, coping, physical wellbeing, self-esteem, leisure time, social support and private life; they were isolated from principal component analysis explaining 73% of the total variance. The missing data and the floor effects were low. Some ceiling effects were found for B (34%). Cronbach's alpha coefficients ranged from 0.72 to 0.89, except private life (PL) (0.55). Unidimensionality of the scales was confirmed by Rasch analyses. Correlations with other instruments confirmed the isolated content and significant links were found with respect to patient's characteristics. Reproducibility and sensitivity to change were found satisfactory.Conclusion: The CarGOQoL could provide a reliable and valid measure of caregivers of cancer patients' QoL which are key-actors in the provision of health care. (C) 2011 Elsevier Ltd. All rights reserved.