Developing a descriptive system for a new preference-based measure of health-related quality of life for children
Developing a descriptive system for a new preference-based measure of health-related quality of life for children
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DOI：
10.1007/s11136-009-9524-9
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发表时间：
2009-10-01
影响因子：
3.5
通讯作者：
Stevens, Katherine
中科院分区：
文献类型：
--
作者：
Stevens, Katherine
在卫生保健资源分配决策中，越来越多地使用基于偏好的健康相关生活质量（HRQoL）测量方法。虽然在成人中有广泛用于此目的的措施，但在儿科领域的研究更为有限。本文报告了如何从先前研究中确定的维度开发新的儿科HRQoL通用PBM的描述系统。现有的量表从儿科文献的适用性进行了审查，量表也开发经验，基于定性访谈数据的儿童，通过采取状语短语和确认与儿童排序练习的共同性。将所得的量表应用于先前研究的维度。在儿科文献中没有找到合适的量表，因此使用经验推导的量表，导致七种不同的类型。孩子们成功地将这些排序以确定顺序，并将这些类型应用于维度。这项工作已经实证地开发了一个描述系统的维度HRQoL确定在以前的研究。需要进一步的研究在儿科人群中测试描述系统，并减少适合健康状况评估的维度数量。
The use of preference-based measures (PBMs) of health-related quality of life (HRQoL) is increasing in health care resource allocation decisions. Whilst there are measures widely used for this purpose in adults, research in the paediatric field is more limited. This paper reports on how the descriptive system for a new paediatric generic PBM of HRQoL was developed from dimensions identified in previous research.Existing scales from the paediatric literature were reviewed for suitability, and scales were also developed empirically, based on qualitative interview data from children, by taking adverbial phrases and confirming the ordinality by a ranking exercise with children. The resulting scales were applied to the dimensions from the previous research.No suitable scales were found in the paediatric literature, so the empirically derived scales were used resulting in seven different types. Children were successfully able to rank these to determine the ordinality, and these types were applied to the dimensions.This work has empirically developed a descriptive system for the dimensions of HRQoL identified in previous research. Further research is needed to test the descriptive system on a paediatric population and reduce the number of dimensions to be amenable to health state valuation.