Parental Ranking of Terms Describing Nonepileptic Events
Parental Ranking of Terms Describing Nonepileptic Events
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DOI：
10.1016/j.pediatrneurol.2012.12.029
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发表时间：
2013-05-01
影响因子：
3.8
通讯作者：
Buchhalter, Jeffrey R.
中科院分区：
文献类型：
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作者：
Morgan, Lindsey A.;Dvorchik, Igor;Buchhalter, Jeffrey R.
在儿童和青少年中，心因性病因的阵发性非癫痫事件很常见。患者和他们的父母经常被用来描述这些事件的术语所迷惑。这可能导致挫折，并可能导致无法获得必要的非药物治疗。各种术语被用来描述这些事件，其中一些可能被认为是对某些人的冒犯。从146名父母或监护人的调查确定从一般儿科诊所，一般神经科诊所，和小儿癫痫监测单位完成的目的是确定哪些单词和短语是最不冒犯。经确定，非癫痫事件、功能性癫痫发作和非癫痫发作障碍是最不令人反感的标签;而“这一切都在他或她的头脑中”、歇斯底里性癫痫发作和心因性癫痫发作是最令人反感的术语。这是该类型在儿科人群中的唯一研究。虽然每个孩子和家庭需要个性化的沟通，我们希望这篇文章将提供有用的信息，以指导执业儿科神经科医生在通知家庭，他们的孩子有非癫痫病因的事件。(C)2013 Elsevier Inc. All rights reserved.
Paroxysmal nonepileptic events of psychogenic etiology in children and adolescents are common. Patients and their parents are often confused by the terminology used to describe these events. This can lead to frustration and may result in the failure to obtain the necessary nonpharmacologic treatment. Various terms are used to describe such events, some of which might be considered offensive to some individuals. Surveys from 146 parents or guardians of patients identified from a general pediatric clinic, a general neurology clinic, and a pediatric epilepsy monitoring unit were completed with the aim of determining which words and phrases were least offensive. It was determined that nonepileptic events, functional seizures, and nonepileptic attack disorder were the least offensive labels; whereas "it is all in his or her head," hysterical seizures, and psychogenic seizures were the most offensive terms. This is the only study of its type in the pediatric population. Although each child and family requires individualized communication, we hope that this article will provide useful information to guide the practicing pediatric neurologist in informing families that their children are having events of nonepileptic etiology. (C) 2013 Elsevier Inc. All rights reserved.