Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study
Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study
复制标题
DOI：
10.1017/cts.2019.371
复制
发表时间：
2019-06-01
影响因子：
2.6
通讯作者：
Kandula, Namratha R.
中科院分区：
文献类型：
--
作者：
Kanaya, Alka M.;Chang, Ann;Kandula, Namratha R.
简介：关于南亚人 (SA) 的纵向研究很少，有关该族裔群体招募和保留方法的信息也很少。方法：我们对居住在美国的南亚人动脉粥样硬化中介者 (MASALA) 队列中的 906 名 SA 进行了为期 5 年的跟踪调查。幸存的参与者被邀请参加 2015 年至 2018 年的第二次临床检查。2017 年至 2018 年期间招募了新一波参与者。我们评估了不同招聘和保留方法的收益。结果：共有 759 名（83%）人完成了第二次临床考试，并招募了 258 名新参与者。提供附近的社区医院地点进行学习考试、提供出租车/拼车报销以及进行家访是提高保留率的最有效方法。新的参与者招募针对的是女性和社会经济地位较低的个人，我们发现参与者推荐和积极的社区参与是最有效的。向通过电子健康记录识别的人邮寄邀请函的成功率非常低。结论：解决交通障碍和增加社区参与的招募和保留策略将有助于提高 SA 在健康研究中的代表性。
Introduction: There are few longitudinal studies about South Asians (SAs) and little information about recruitment and retention approaches for this ethnic group. Methods: We followed 906 SAs enrolled in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) cohort for 5 years. Surviving participants were invited for a second clinical exam from 2015 to 2018. A new wave of participants was recruited during 2017-2018. We assessed the yields from different methods of recruitment and retention. Results: A total of 759 (83%) completed the second clinical exam, and 258 new participants were enrolled. Providing a nearby community hospital location for the study exam, offering cab/shared ride reimbursement, and conducting home visits were the most effective methods for enhancing retention. New participant recruitment targeted women and individuals with lower socioeconomic status, and we found that participant referrals and active community engagement were most effective. Mailing invitational letters to those identified by electronic health records had very low yield. Conclusion: Recruitment and retention strategies that address transportation barriers and increase community engagement will help increase the representation of SAs in health research.