Diabetes-Related Topics in an Online Forum for Caregivers of Individuals Living With Alzheimer Disease and Related Dementias: Qualitative Inquiry
Diabetes-Related Topics in an Online Forum for Caregivers of Individuals Living With Alzheimer Disease and Related Dementias: Qualitative Inquiry
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DOI：
10.2196/17851
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发表时间：
2020-07-06
影响因子：
7.4
通讯作者：
Wang, Jing
中科院分区：
文献类型：
--
作者：
Du, Yan;Paiva, Kristi;Wang, Jing
背景资料：糖尿病和阿尔茨海默病及相关痴呆症（ADRD）分别是美国第七和第六大死亡原因，它们在许多老年人中共存。照顾一个心爱的人与ADRD和diabetes是具有挑战性和burdensome.Objective：本研究的目的是探讨糖尿病相关的主题在阿尔茨海默氏症协会ALZConnected照顾者论坛的家庭照顾者的人生活与ADRD.Methods：用户帖子阿尔茨海默氏症协会ALZConnected照顾者论坛提取。共有528个与糖尿病有关的职位被纳入分析。在生成528个帖子的用户中，约96.1%（275/286）是ADRD护理接受者的亲属（例如，子女、孙子、配偶、兄弟姐妹或未指明的亲属）。两名研究人员使用主题分析独立分析数据。任何分歧都在研究小组之间进行了讨论，并达成了一项协议，认为有必要与高级研究员的投入。结果显示，ADRD的合并症是家庭照顾者讨论的共同话题。ADRD中的糖尿病管理对家庭护理人员提出了挑战。家庭照顾者可能会因为照顾负担而忽视自己的健康护理，他们报告健康状况不佳，生活质量下降。在线论坛提供了一个平台，为家庭照顾者寻求支持，他们试图了解更多关于如何管理他们的照顾对象的ADRD，并寻求支持，管理自己的生活作为carefuls.Conclusions：ALZConnected论坛提供了一个平台，照顾者寻求信息和情感支持，照顾ADRD和糖尿病患者。根据在线论坛的讨论，这两种健康状况对照顾者和接受照顾者的巨大负担是显而易见的。迫切需要研究为糖尿病和ADRD患者的糖尿病管理提供实用的指南和干预措施。未来的研究，探索提供糖尿病管理干预措施，通过在线社区的照顾者和他们的照顾者与ADRD和糖尿病是必要的。
Background: Diabetes and Alzheimer disease and related dementias (ADRD) are the seventh and sixth leading causes of death in the United States, respectively, and they coexist in many older adults. Caring for a loved one with both ADRD and diabetes is challenging and burdensome.Objective: This study aims to explore diabetes-related topics in the Alzheimer's Association ALZConnected caregiver forum by family caregivers of persons living with ADRD.Methods: User posts on the Alzheimer's Association ALZConnected caregiver forum were extracted. A total of 528 posts related to diabetes were included in the analysis. Of the users who generated the 528 posts, approximately 96.1% (275/286) were relatives of the care recipient with ADRD (eg, child, grandchild, spouse, sibling, or unspecified relative). Two researchers analyzed the data independently using thematic analysis. Any divergence was discussed among the research team, and an agreement was reached with a senior researcher's input as deemed necessary.Results: Thematic analysis revealed 7 key themes. The results showed that comorbidities of ADRD were common topics of discussions among family caregivers. Diabetes management in ADRD challenged family caregivers. Family caregivers might neglect their own health care because of the caring burden, and they reported poor health outcomes and reduced quality of life. The online forum provided a platform for family caregivers to seek support in their attempts to learn more about how to manage the ADRD of their care recipients and seek support for managing their own lives as caregivers.Conclusions: The ALZConnected forum provided a platform for caregivers to seek informational and emotional support for caring for persons living with ADRD and diabetes. The overwhelming burdens with these two health conditions were apparent for both caregivers and care recipients based on discussions from the online forum. Studies are urgently needed to provide practical guidelines and interventions for diabetes management in individuals with diabetes and ADRD. Future studies to explore delivering diabetes management interventions through online communities in caregivers and their care recipients with ADRD and diabetes are warranted.