When a family member has a malignant brain tumor: The caregiver perspective
When a family member has a malignant brain tumor: The caregiver perspective
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DOI：
10.1097/01376517-200804000-00006
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发表时间：
2008-04-01
影响因子：
2.3
通讯作者：
Salacz, Michael
中科院分区：
文献类型：
--
作者：
Schmer, Carol;Ward-Smith, Peggy;Salacz, Michael
原发性恶性脑肿瘤的发病率在过去10年中保持稳定，中位生存期为12个月。一旦病人被诊断出来，对他或她的护理主要由家庭成员来完成。虽然以前的研究已经记录了与照顾相关的压力、抑郁、焦虑和负担，但这些情况何时发生尚不清楚。本研究的目的是探讨护理者在病人接受化疗作为初始治疗时提供护理的角度。使用现象学技术，从与家庭照顾者的半结构化访谈和自我披露的人口统计数据中获得数据。每次访谈都是在患者接受治疗时进行的；所有患者均在初诊后6个月内。访谈数据使用Colaizzi的方法进行分析，该方法可以揭示参与者的普遍主题。来自10名参与者的访谈数据提供了饱和度，并确定了三个主题：(a)脑肿瘤的诊断是一种震惊；(b)直系亲属角色发生变化；(c)对照顾者、他或她的家庭和脑肿瘤患者有心理社会影响。
The incidence of primary malignant brain tumors has remained stable over the past 10 years, with median survival reported as 12 months. Once the patient has been diagnosed, providing care for him or her is primarily performed by family members. Although previous research has documented the stress, depression, anxiety, and burden associated with caregiving, when these conditions occur is not known. The purpose of this study was to explore the caregiver perspective of providing care while the patient was receiving chemotherapy as initial treatment for the disease. Using phenomenological techniques, data were obtained from semistructured interviews with family caregivers and self-disclosed demographic data. Each interview occurred while the patient was receiving treatment; all patients were within 6 months of initial diagnosis. Interview data were analyzed using Colaizzi's method, which allowed themes universal to the participants to be uncovered. Interview data from 10 participants provided saturation and identified three themes: (a) the diagnosis of a brain tumor is a shock; (b) immediate family role changes occur; and (c) there are psychosocial effects for the caregiver, his or her family, and the person with the brain tumor.