Evaluation of the Utility of a Transition Workbook in Preparing Adolescent and Young Adult Cancer Survivors for Transition to Adult Services: A Pilot Study
Evaluation of the Utility of a Transition Workbook in Preparing Adolescent and Young Adult Cancer Survivors for Transition to Adult Services: A Pilot Study
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DOI：
10.1177/1043454215590102
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发表时间：
2016-03-01
影响因子：
1.7
通讯作者：
Bender, Joyce
中科院分区：
文献类型：
--
作者：
Bashore, Lisa;Bender, Joyce
过渡到成人照顾青少年和年轻的成年幸存者是具有挑战性的，是包括几个因素，如知识和发展，情感，和社会地位的幸存者和父母。这项试点研究探讨了过渡工作手册的可行性，这是一种帮助青少年和年轻人过渡到成人护理的方法。使用混合方法设计，研究人员还测量了30名幸存者的过渡担忧和准备情况。在6个月的时间里，为幸存者和父母完成工作手册提供了支持。这本手册包括幸存者的治疗史、何时和向谁寻求令人担忧的症状、处方和保险、健康实践的教育目标以及如何达到目标以及独立生活等部分。20名幸存者完成了这项研究，并报告了对离开儿科肿瘤学的更大担忧，但表示需要做出改变以过渡到成人护理。关于向成人提供者过渡的模糊和恐吓以及儿科环境的舒适是幸存者表达的主题。结果表明，需要成人/儿科合作过渡计划，使用各种标准化的方法来解决过渡准备和评估。
Transition to adult care for adolescent and young adult survivors is challenging and is inclusive of several factors like knowledge and developmental, emotional, and social status of survivors and parents. This pilot study addressed the feasibility of a transition workbook, a method of preparing adolescent and young adults to transition to adult care. Using a mixed methods design, investigators also measured transition worry and readiness in 30 survivors. Support was provided throughout a 6-month period as survivors and parents completed the workbook. The workbook included sections about the treatment history of survivors, when and who to call for worrisome symptoms, prescriptions and insurance, educational goals for health practices and how to get there, and independent living. Twenty survivors completed the study and reported greater worry about leaving pediatric oncology but indicated the need to make changes to transition to adult care. Ambiguity and intimidation about transitioning to adult providers and comfort in pediatric setting were themes expressed by survivors. Results indicate the need for adult/pediatric collaborative transition programs using various standardized methods of addressing transition readiness and evaluation.