Patient and public involvement in clinical guidelines: international experiences and future perspectives
Patient and public involvement in clinical guidelines: international experiences and future perspectives
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DOI：
10.1136/qshc.2009.034835
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发表时间：
2010-10-01
影响因子：
--
通讯作者：
Burgers, Jako
中科院分区：
文献类型：
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作者：
Boivin, Antoine;Currie, Kay;Burgers, Jako
临床实践指南（CPG）是改善患者护理的重要工具。患者和公众参与被认为是CPG制定和实施的重要组成部分，国际网络患者和公众参与工作组（G-I-N PUBLIC）旨在支持发展，实施和评价以指南为导向病人和公众参与方案目的制定一个关于患者和公众参与CPG的国际实践和研究议程。方法56名CPG开发人员，研究人员，和来自14个不同国家的病人/公众代表进行了磋商。建议进行了验证与G-I-N公共指导委员会members.Results许多CPG组织已经建立了PPIP，使用一系列的参与，咨询和沟通方法。目前的PPIP旨在提高CPG的质量和响应公众的期望和需求，或促进个人医疗保健决策。一些组织使用结构化参与方法，包括为患者和公众代表提供培训。一些财政、组织和社会政治障碍限制了病人和公众的参与。过程和影响评估的缺乏限制了我们目前的理解的条件下，病人和公众的参与是最有可能是effective.Conclusion更大的国际合作和研究，需要加强现有的知识，发展和评估病人和公众参与CPG。
Background Clinical practice guidelines (CPG) are important tools for improving patient care. Patient and public involvement is recognised as an essential component of CPG development and implementation, The Guideline International Network Patient and Public Involvement Working Group (G-I-N PUBLIC) aims to support the development, implementation and evaluation of guideline-oriented patient and public involvement programmes (PPIPs).Objective To develop an international practice and research agenda on patient and public involvement in CPG.Method 56 CPG developers, researchers, and patient/public representatives from 14 different countries, were consulted in an international workshop. Recommendations were validated with G-I-N PUBLIC steering committee members.Results Many CPG organisations have set up PPIPs that use a range of participation, consultation and communication methods. Current PPIPs aim to improve the quality and responsiveness of CPGs to public expectations and needs, or to foster individual healthcare decisions. Some organisations use structured involvement methods, including providing training for patient and public representatives. A number of financial, organisational and sociopolitical barriers limit patient and public involvement. The paucity of process and impact evaluations limits our current understanding of the conditions under which patient and public involvement is most likely to be effective.Conclusion Greater international collaboration and research are needed to strengthen existing knowledge, development and evaluation of patient and public involvement in CPG.