A Situated Practice of Ethics for Participatory Visual and Digital Methods in Public Health Research and Practice: A Focus on Digital Storytelling

A Situated Practice of Ethics for Participatory Visual and Digital Methods in Public Health Research and Practice: A Focus on Digital Storytelling
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DOI:
10.2105/ajph.2013.301310
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发表时间:
2014-09-01
影响因子:
12.7
通讯作者:
Flicker, Sarah
Flicker, Sarah
中科院分区:
医学2区
文献类型:
--
作者:
Gubrium, Aline C.;Hill, Amy L.;Flicker, Sarah

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本文通过一种被称为“数字叙事”的方法,探讨了与公共卫生研究和实践的参与式视觉和数字方法相关的伦理考虑。我们首先简要介绍数字叙事过程及其在公共卫生研究和实践中的应用。接下来,我们探讨了6个常见的挑战:模糊的边界、招募和同意参与、塑造的力量、代表和伤害、保密性和材料的发布。我们讨论了它们的复杂性,并为道德实践提供了一些考虑。我们希望这篇文章能成为扩大对话的催化剂,讨论高标准的诚信和伦理实践的必要性,其中研究人员和从业人员反射性地将伦理决策视为正在进行的公共卫生工作的一部分。
This article explores ethical considerations related to participatory visual and digital methods for public health research and practice, through the lens of an approach known as "digital storytelling." We begin by briefly describing the digital storytelling process and its applications to public health research and practice. Next, we explore 6 common challenges: fuzzy boundaries, recruitment and consent to participate, power of shaping, representation and harm, confidentiality, and release of materials. We discuss their complexities and offer some considerations for ethical practice. We hope this article serves as a catalyst for expanded dialogue about the need for high standards of integrity and a situated practice of ethics wherein researchers and practitioners reflexively consider ethical decision-making as part of the ongoing work of public health.