Adherence to Use of a Home-Based Exercise DVD in People With Huntington Disease: Participants' Perspectives

Adherence to Use of a Home-Based Exercise DVD in People With Huntington Disease: Participants' Perspectives
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DOI:
10.2522/ptj.20100438
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发表时间:
2012-01-01
期刊:
影响因子:
3.2
通讯作者:
Busse, Monica
Busse, Monica
中科院分区:
医学2区
文献类型:
--
作者:
Khalil, Hanan;Quinn, Lori;Busse, Monica

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背景对于患有亨廷顿病(HD)的人来说,定期进行个性化的运动指导可能是可取的。然而,持续的干预措施可能不是终身疾病管理的最可行方法。因此,对于物理治疗师来说,找到促进参与独立锻炼计划的方法至关重要。DVD技术的功能可以使DVD成为一种有用的格式,以促进有动机和认知问题的HD患者的参与。本研究的目的是探讨HD患者如何使用家庭锻炼DVD,以及参与者和他们的同伴如何感知。本研究采用了探索性、混合方法设计。方法。15名HD参与者获得了作者开发的运动DVD,以支持他们参与家庭运动计划。运动日记被用来记录坚持率。半结构化的访谈进行了探讨哪些因素影响的DVD的可用性。谈话都有录音和完全的文字记录。采用内容分析法对访谈内容进行分析。大多数参与者(11/15,73.3%)坚持使用DVD。与会者认为,演习是合适的。护理人员的承诺是该计划成功的关键,这是数据中出现的主题。参与者确定了影响坚持使用锻炼DVD的障碍和促进因素,并描述了有助于促进坚持锻炼计划的管理策略。结论。DVD被认为是合适的和支持的。DVD可适用于支持HD患者在治疗疗程之外或完成治疗计划后在家中进行锻炼。
Background. Individualized exercise instruction on a regular basis may be desirable for people with Huntington disease (HD). Sustained interventions, however, may not be the most feasible for lifelong disease management. It is critical, therefore, for physical therapists to find ways to facilitate engagement in independent exercise programs. The capabilities of DVD technology can make the DVD a useful format to facilitate engagement for people with HD who have motivational and cognitive problems.Objective. The purpose of this study was to explore how people with HD used a home-based exercise DVD and how it was perceived by the participants and their caregivers.Design. An exploratory, mixed-method design was used in this study.Methods. Fifteen participants with HD were provided with an exercise DVD, developed by the authors, to support their engagement in a home-based exercise program. Exercise diaries were used to record adherence rates. Semistructured interviews were conducted to explore what factors affected the usability of the DVD. Conversations were audio recorded and fully transcribed. Content analysis approach was used to analyze the interviews.Results. Most of the participants (11/15, 73.3%) adhered well to the use of the DVD. Participants felt that the exercises were suitable. Commitment of the caregiver as a key to the success of the program was the main theme that emerged from the data. Participants identified barriers and facilitators that affected adherence to using the exercise DVD and described management strategies that helped promote adherence to the exercise program.Conclusions. The DVD was perceived to be suitable and supportive. The DVD could be appropriate for use in supporting people with HD to engage in exercise at home, either outside of therapy sessions or upon completion of a therapy program.