Measuring patient-reported outcomes: moving beyond misplaced common sense to hard science
Measuring patient-reported outcomes: moving beyond misplaced common sense to hard science
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DOI：
10.1186/1741-7015-9-86
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发表时间：
2011-07-14
期刊：
影响因子：
9.3
通讯作者：
McKenna, Stephen P.
中科院分区：
文献类型：
--
作者：
McKenna, Stephen P.
人们对病人对自己的疾病和治疗的看法的兴趣急剧增加。然而，我们适当衡量这些问题的能力远远落后于人们的兴趣和需要。这种衡量往往被认为是一种简单和琐碎的活动，只需要运用常识。然而，患者报告结果的高质量测量是一项复杂的活动，需要相当多的专业知识和经验。本次审查认为，最重要的问题，这种测量的背景下，慢性病和详细的文书应如何开发，验证和调整使用其他语言。虽然在如何最好地开展这些活动方面往往有共识，但通常没有什么证据支持这种雅阁。本文质疑这些正统的观点，并提出替代方法，已被证明是有效的。
Interest in the patient's views of his or her illness and treatment has increased dramatically. However, our ability to appropriately measure such issues lags far behind the level of interest and need. Too often such measurement is considered to be a simple and trivial activity that merely requires the application of common sense. However, good quality measurement of patient-reported outcomes is a complex activity requiring considerable expertise and experience. This review considers the most important issues related to such measurement in the context of chronic disease and details how instruments should be developed, validated and adapted for use in additional languages. While there is often consensus on how best to undertake these activities, there is generally little evidence to support such accord. The present article questions these orthodox views and suggests alternative approaches that have been shown to be effective.