Family caregivers in palliative care
Family caregivers in palliative care
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DOI：
10.1016/j.cger.2004.07.003
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发表时间：
2004-11-01
影响因子：
3.3
通讯作者：
Kramer, BJ
中科院分区：
文献类型：
--
作者：
Hauser, JM;Kramer, BJ
该条对非正式照料的定义宽泛，包括家庭成员提供的非正式（即无报酬）照料，这种照料超出了社会关系中提供的习惯和规范社会支助。家庭照顾者在照顾患有晚期慢性病的老年人以及姑息治疗和临终关怀方面发挥着重要作用。这些照顾者通常参与关键的医疗决策，为日常生活活动提供重要的帮助，并为社区老年人提供大多数非药物和药物治疗建议。本文介绍了家庭照顾者和护理成本，并介绍了压力过程模型，以突出必要的姑息治疗的背景下，照顾的经验和需求。用于支持照顾者的常见干预措施突出，照顾者之间的丧亲经历进行了讨论。
This article defines caregiving broadly to include the informal (ie, unpaid) care provided by family members that goes beyond customary and normative social support provided in social relationships. Family caregivers play significant roles in the care of elders with advanced chronic disease and in the context of palliative and end-of-life care. These caregivers typically are involved in critical medical decisions, provide vital assistance with activities of daily living, and carry out most nonpharmacologic and pharmacologic treatment recommendations for community-based elders. This article describes family caregivers and the costs of care and introduces the stress process model to highlight essential caregiving experiences and needs in the context of palliative care. Common interventions used to support caregivers are highlighted, and the bereavement experience among caregivers is discussed.