Examining the role of subjective and objective burden in carer health-related quality of life: the case of colorectal cancer
Examining the role of subjective and objective burden in carer health-related quality of life: the case of colorectal cancer
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DOI：
10.1007/s00520-014-2551-2
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发表时间：
2015-07-01
影响因子：
3.1
通讯作者：
Sharp, Linda
中科院分区：
文献类型：
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作者：
Hanly, Paul;Maguire, Rebecca;Sharp, Linda
我们的目的是调查爱尔兰结肠直肠癌患者护理人员的主观护理负担与健康相关生活质量（身体和精神）之间的关系，并对护理人员客观因素进行补充分析。在2010年8月至2011年3月期间，向228名结直肠癌非正式护理人员发送了邮寄问卷，其中包括护理人员反应评估（CRA）和SF-12v2。多元回归分析评估五个CRA域（家庭支持、财务状况、时间安排、健康和尊重）是否预测照顾者的心理或身体健康。组间比较研究了这些领域在客观因素方面的差异。153名护理员（82%为女性）完成问卷调查（回复率为68%）。照护者身体成分总结（PCS）平均为48.56 (SD = 10.38)，精神成分总结（MCS）平均为49.22 （SD = 9.7）。五个CRA因素解释了PCS分数30%的方差和MCS分数28%的方差。健康负担（beta = - 0.76, p < 0.001）和日程负担（beta = 0.28, p = 0.01）是PCS的显著预测因子。财务负担（beta = - 0.24, p = 0.01）和自尊（beta = - 0.18, p = 0.03）显著预测MCS。年轻的照顾者、配偶、有合并症的人以及收入没有变化的人的PCS明显较低。在照顾者心理健康方面没有统计学上显著的组间差异。我们的研究结果表明，需要认识到照顾对照顾者影响的不同方面（即身体和精神），以及主观照顾者负担的不同领域和客观因素对这些方面的影响是不同的。这对那些在生存连续过程中向护理人员提供支持的人具有重要意义。
Our aim was to investigate associations between the subjective burden of care and health-related quality of life (both physical and mental) within colorectal cancer patient carers in Ireland, with supplementary analysis of carer objective factors.Two hundred twenty-eight colorectal cancer informal carers were sent a postal questionnaire between August 2010 and March 2011 which included the Caregiver Reaction Assessment (CRA) and the SF-12v2. Multiple regression analysis assessed whether five CRA domains (family support, finances, schedule, health and esteem) predicted carer mental or physical health. Between-group comparisons investigated differences in these domains across objective factors.One hundred fifty-three carers (82 % female) completed the questionnaire (response rate = 68 %). Carers' mean physical component summary (PCS) was 48.56 (SD = 10.38) and mean mental component summary (MCS) was 49.22 (SD = 9.7). Five CRA factors explained 30 % of variance in the PCS score and 28 % of variance in the MCS score. Health burden (beta = -.76, p < .001) and schedule burden (beta = .28, p = .01) were significant predictors of PCS. MCS was significantly predicated by financial burden (beta = -.24, p = .01) and esteem (beta = -.18, p = .03). Younger carers, spouses, those with a comorbid condition and those with no income change had significantly lower PCS. There were no statistically significant group differences for carer mental health.Our results demonstrate the need to recognise the distinctive aspects of the impact of caring (i.e., physical and mental) on carers and that different domains of subjective carer burden and objective factors impact differently on each of these. This has important implications for those delivering support to carers over the course of the survivorship continuum.