Ethnicity recording in health and social care data collections in Ireland: where and how is it measured and what is it used for?
Ethnicity recording in health and social care data collections in Ireland: where and how is it measured and what is it used for?
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DOI：
10.1186/s12939-019-1107-y
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发表时间：
2020-12-31
影响因子：
4.8
通讯作者：
MacFarlane, Anne
中科院分区：
文献类型：
--
作者：
Hannigan, Ailish;Villarroel, Nazmy;MacFarlane, Anne
背景在欧洲联盟(欧盟)，《种族平等指令》禁止基于种族和民族血统的歧视。爱尔兰是欧盟仅有的三个将收集平等数据的法律义务赋予公共机构的国家之一。它为研究族裔平等监测提供了一个重要的背景；然而，还没有对其在保健信息系统中发生的位置进行系统的测绘。这项研究的目的是确定所有现有的具有族裔信息的国家保健和社会保健数据收集，并探讨如何收集和使用这些数据。方法对国家卫生和社会保健数据收集目录(N=97)进行电子搜索，以确定任何包含种族信息的收集。搜索了数据词典，并联系了关键的线人。对于收集族裔信息的每一次数据收集，提取了关于使用的族裔类别和如何收集这些数据的数据；族裔记录的完整性；以及数据收集中与族裔有关的其他衡量标准。这些与族裔有关的数据收集的相关产出是通过关键线人和电子搜索确定的。结果在收集的97份数据中，14份(14%)收集了民族或文化背景信息。出生国家是由这14个数据收集中的10个收集的。大多数人使用人口普查中的种族类别，并建议种族应该自我确定，而不是分配。报告的识别率普遍很高(>；=90%)。记录种族的数据收集往往侧重于潜在的高危人群，没有在初级保健中进行常规记录。有一些例子表明，族裔平等监测为有针对性的干预措施提供了信息，例如，疫苗接种宣传倡议或对保健工作人员的文化培训。结论尽管有强烈的政策和法律要求，但在爱尔兰的卫生和社会保健数据收集中，种族数据收集有限。虽然有一些例子表明，在哪些方面发现了族裔差异并采取了行动，但需要对族裔数据的收集、质量和利用采取更协调和全面的办法，以促进健康公平。
Background In the European Union (EU), discrimination based on racial and ethnic origin is prohibited under the Racial Equality Directive. Ireland is one of only three EU countries where a legal duty of equality data collection is placed on public bodies. It provides an important context in which to study ethnic equality monitoring; however no systematic mapping of where it occurs in health information systems has been carried out. The aim of this study is to identify all existing national health and social care data collections with information on ethnicity and to explore how this data has been collected and used. Methods An electronic search of a national catalogue of health and social care data collections (N = 97) was carried out to identify any collections which contained information on ethnicity. Data dictionaries were searched and key informants contacted. For each of the data collections that collected information on ethnicity, data was extracted on the ethnic categories used and how this data is collected; the completeness of ethnicity recording; and other measures related to ethnicity in the data collection. Relevant outputs for these data collections, related to ethnicity, were identified through key informants and electronic searches. Results Of the 97 data collections, 14 (14%) collected information on ethnic or cultural background. Country of birth was collected by 10 of these 14 data collections. Most used the ethnic categories in the Census and recommended that ethnicity should be self-identified and not assigned. Reported rates of identification were generally high (>= 90%). Data collections which recorded ethnicity tended to be focused on potentially high-risk populations with no routine recording in primary care. There were some examples of where ethnic equality monitoring had informed targeted interventions e.g. vaccination awareness initiatives or cultural training for healthcare staff. Conclusions Despite strong policy and legal imperatives, there is limited data collection of ethnicity in health and social care data collections in Ireland. While there are some examples of where differences by ethnicity have been identified and acted upon, a more coordinated and comprehensive approach to the collection, quality and utilization of ethnicity data is needed to promote health equity.