Chronically ill adolescents' experiences of communicating with doctors: A qualitative study
Chronically ill adolescents' experiences of communicating with doctors: A qualitative study
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DOI：
10.1016/s1054-139x(03)00047-8
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发表时间：
2003-09-01
影响因子：
7.6
通讯作者：
Sloper, P
中科院分区：
文献类型：
--
作者：
Beresford, BA;Sloper, P
目的：探讨慢性病青少年与卫生专业人员沟通的经验，包括识别阻碍或促进他们使用卫生专业人员作为信息来源的因素。方法：63名青少年（11-16岁）患有慢性病（囊性纤维化，糖尿病，癫痫，青少年慢性关节炎，或杜氏肌营养不良症）进行了采访，并随后与其他年龄相仿的青少年参加了两次小组讨论会。数据进行了分析，使用的框架方法，涉及数据减少，数据显示，和结论绘制和verified.Results：影响沟通的开放性和有效性的因素包括：接触的持续时间和频率;性别;对青少年的感知态度;青少年和卫生专业人员的沟通技巧;和家长和医学生/实习医生的存在。所需信息的类型也影响到青少年是否觉得能够与卫生专业人员讨论问题。青少年不愿意提出个人或敏感问题，或提出问题，显示出不良的遵守。认为缺乏兴趣的更广泛的影响，有一个慢性疾病的日常生活中也是一个障碍，青少年讨论困难，在学校和社会情绪problems.Conclusions：沟通和信息提供的卫生专业人员的关键作用，但这项研究强调了人口与潜在的高水平的信息需要谁面临着相当大的障碍，以解决这些需求。为改善医务人员与保健专业人员的沟通而采取的步骤需要解决一系列实际、态度和行为因素。(C)青少年医学协会，2003年。
Purpose: To explore the experiences of chronically ill adolescents in communicating with health professionals, including the identification of factors which hinder or facilitate their use of health professionals as an information source.Methods: 63 adolescents (11-16 years) with a chronic condition (cystic fibrosis, diabetes, epilepsy, juvenile chronic arthritis, or Duchenne muscular dystrophy) were interviewed, and subsequently took part in two group discussion meetings with other adolescents of a similar age with the same condition. Data were analyzed using the framework method involving data reduction, data display, and conclusion-drawing and verification.Results: Factors affecting the openness and effectiveness of communication included: duration and frequency of contact; gender; perceived attitudes towards adolescents; the communication skills of the adolescent and health professional; and the presence of parents and medical students/trainee doctors. The type of information needed also affected whether the adolescents felt able to discuss an issue with a health professional. Adolescents were reluctant to raise personal or sensitive issues or to ask questions that revealed poor adherence. A perceived lack of interest in the wider impacts of having a chronic condition on day-to-day life was also a barrier to adolescents discussing difficulties at school and socio-emotional problems.Conclusions: Communication and information provision are key roles for health professionals, yet this study highlights a population with potentially high levels of information need who are facing considerable barriers to addressing these needs. Steps taken to improve adolescent-health professional communication need to address a range of practical, attitudinal and behavioral factors. (C) Society for Adolescent Medicine, 2003.