Sleeping with One Eye Open: The sleep experience of family members providing palliative care at home
Sleeping with One Eye Open: The sleep experience of family members providing palliative care at home
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DOI：
10.1177/082585971102700202
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发表时间：
2011-06-01
影响因子：
1.7
通讯作者：
Harlos, Michael
中科院分区：
文献类型：
--
作者：
Hearson, Brenda;McClement, Susan;Harlos, Michael
目的：实证描述晚期癌症患者家庭照顾者（n=13）的睡眠体验。方法：采用混合方法：家庭访谈;埃普沃思嗜睡量表（ESS）;匹兹堡睡眠质量指数（PSQI）;和体动仪测量。定性数据分析采用恒定的比较内容技术。用于体动记录数据的Actiware和社会科学统计软件包-15（SPSS-15）生成了描述性和相关性统计数据。研究结果：首要的主题“睁一只眼睡觉”抓住了照顾者的睡眠经验的警惕性。通过定量结果验证了护理人员叙述：5家庭照顾者（38.5%）的ESS评分>= 11，表明白天过度嗜睡，所有护理人员的PSQI总分> 5，表明中度至重度睡眠问题，体动记录评分-包括总睡眠时间，睡眠效率和入睡后清醒时间-超过文献记录的正常值。结论：对患者和家属的睡眠状况进行完美的评估，睡眠教育，干预策略和高质量的喘息服务在社区姑息治疗中至关重要。
Purpose: To empirically describe the sleep experience of family caregivers (n=13) of advanced cancer patients. Method: Mixed methodology using: family interviews; Epworth Sleepiness Scale (ESS); Pittsburgh Sleep Quality Index (PSQI); and actigraphy measurement. Qualitative data analysis utilized constant comparative content techniques. Actiware for the actigraphy data and the Statistical Package for the Social Sciences-15 (SPSS-15) generated descriptive and correlation statistics. Findings: The overarching theme "sleeping with one eye open" captures the vigilant nature of caregivers' sleep experiences. Caregiver narratives were validated by quantitative findings: 5 of the family caregivers (38.5 percent) had an ESS score >= 11 indicative of excessive daytime sleepiness, all caregivers had a PSQI global score > 5 indicative of moderate to severe sleep problems, and actigraphy scores - including total sleep time, sleep efficiency, and time awake after sleep onset fell beyond normal values documented in the literature. Conclusion: Impeccable assessment of the patient's and family's sleep status, sleep education, intervention strategies, and high-quality respite services are critical in community-based palliative care.