Survey of patient and public perceptions of electronic health records for healthcare, policy and research: study protocol.

Survey of patient and public perceptions of electronic health records for healthcare, policy and research: study protocol.
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DOI:
10.1186/1472-6947-12-40
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发表时间:
2012-05-23
影响因子:
3.5
通讯作者:
Reed JE
Reed JE
中科院分区:
医学3区
文献类型:
--
作者:
Luchenski S;Balasanthiran A;Marston C;Sasaki K;Majeed A;Bell D;Reed JE

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通过电子数据库立即访问患者的完整健康记录可以改善医疗保健并促进健康研究。然而,国家电子健康记录(EHR)系统可能带来的好处必须与公众对数据安全和个人隐私的担忧相平衡。电子健康记录的成功开发需要更好地了解公众和受电子健康记录影响最大的人的意见:国家卫生服务的用户。本研究旨在探讨个人医疗经验(包括医疗接触次数和长期疾病的数量和类型)与电子健康记录在医疗、医疗服务规划和政策以及健康研究方面的发展意见之间的相关性。一个多站点的横截面自我完成的问卷设计和试点使用在候诊室管理的病人从随机选择的门诊诊所在大学教学医院(431张病床)和一般的做法手术从四个初级保健信托基金的集水区内的医院。2011年8月至9月期间,所有进入选定门诊诊所和全科手术的患者都被邀请参加调查。将使用描述性技术进行统计分析,以呈现受访者对电子健康记录的总体看法,并进行逻辑回归,以探索这些看法与参与者的个人情况、经历、社会人口统计学以及对电子健康记录的更具体看法之间的关联。研究设计和实施是成功的,导致异常高的响应率和总体招募(85.5%,5336响应)。在以前的工作中,面对面招聘的比例是可变的,但通常较低(平均76.7%,SD 20)。我们讨论了我们如何收集数据的细节,以深入了解我们如何获得这种异常高的响应率。
Immediate access to patients’ complete health records via electronic databases could improve healthcare and facilitate health research. However, the possible benefits of a national electronic health records (EHR) system must be balanced against public concerns about data security and personal privacy. Successful development of EHR requires better understanding of the views of the public and those most affected by EHR: users of the National Health Service. This study aims to explore the correlation between personal healthcare experience (including number of healthcare contacts and number and type of longer term conditions) and views relating to development of EHR for healthcare, health services planning and policy and health research. A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting rooms was administered to patients from randomly selected outpatients’ clinics at a university teaching hospital (431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive techniques to present respondents’ overall views about electronic health records and logistic regression to explore associations between these views and participants’ personal circumstances, experiences, sociodemographics and more specific views about electronic health records. The study design and implementation were successful, resulting in unusually high response rates and overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how we obtained this unusually high response rate.
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