''Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes
''Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes
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DOI：
10.1016/j.pec.2018.10.016
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发表时间：
2019-03-01
影响因子：
3.5
通讯作者：
Schmajuk, Gabriela
中科院分区：
文献类型：
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作者：
Ragouzeos, Dana;Gandrup, Julie;Schmajuk, Gabriela
目的：在类风湿性关节炎（RA）的常规护理中使用患者报告结局（PROS）已被证明可改善健康结局，然而，将PROS整合到临床访视中并不一致。我们的目的是开发一个“仪表板”的RA患者显示相关的PRO措施进行讨论，在一个常规的RA clinical visit.Methods：患者（N = 45）和供应商（N = 12）从风湿病诊所在一所大学的中心和安全网医院招募。使用以人为本的设计过程，涉及患者，临床医生，设计师和健康IT专家，我们进行了采访，临床观察，和焦点小组，随后引导迭代阶段的原型testing.Results：RA患者和他们的供应商共享的目标，评估福祉和制定个性化的治疗计划。我们发现，对于哪些数据对于指导决策和回答患者的首要问题“我还好吗？”结论：最终的仪表板简化了PRO数据的显示，并将其与患者的药物治疗方案纵向关联。它还包括实验室值相关RA care.Practice的影响：通过以图形方式呈现数据，仪表板可以为患者和提供者提供一个平台，围绕PRO和共同的目标进行沟通。由爱思唯尔公司出版
Objective: Use of patient reported outcomes (PROS) in the routine care of rheumatoid arthritis (RA) has been shown to improve health outcomes, However, integration of PROs into the clinical visit is inconsistent. We aimed to develop a "dashboard" for RA patients to display relevant PRO measures for discussion during a routine RA clinical visit.Methods: Patients (N = 45) and providers (N = 12) were recruited from rheumatology clinics at a university center and a safety net hospital. Using a human-centered design process involving patients, clinicians, designers, and health-IT experts, we performed interviews, clinic observations, and focus groups, which subsequently guided an iterative phase of prototype testing.Results: RA patients and their providers shared the goals of assessing wellbeing and developing a personalized treatment plan. We found conflicting views of which data were most important for guiding decision-making and for answering the patient's overarching question of "Am I OK?"Conclusion: The final dashboard simplified the display of PRO data and correlated it longitudinally to the patient's medication regimen. It also included laboratory values relevant for RA care.Practice implications: By presenting data graphically, the dashboard may provide a platform for patients and providers to communicate around PROs and shared goals. Published by Elsevier B.V.