Siblings Caring for and about Pediatric Palliative Care Patients
Siblings Caring for and about Pediatric Palliative Care Patients
复制标题
DOI：
10.1089/jpm.2013.0117
复制
发表时间：
2014-01-01
影响因子：
2.8
通讯作者：
MacLeod, Roderick D.
中科院分区：
文献类型：
--
作者：
Gaab, Erin M.;Owens, Glynn R.;MacLeod, Roderick D.
背景：对于那些有兄弟姐妹患有限制生命的疾病的年轻人的经历还没有很好的理解。目的：本研究旨在确定儿童姑息治疗（PPC）患者的兄弟姐妹的关注。设计和测量：半结构式访谈管理的参与者和分析使用定性归纳主题分析。背景和参与者：研究对象是居住在奥克兰地区的18名9 - 22岁PPC患者的兄弟姐妹。结果：PPC患者的兄弟姐妹对他们兄弟姐妹即将到来的死亡感到担忧，并希望参与他们的生活和护理。结论：参与有关死亡率和照顾患病兄弟姐妹的对话，可能会使婴儿受益。他们能够表达他们的担忧，并帮助为PPC患者提供护理。
Background: The experiences of young people who have siblings with life-limiting illnesses are not well understood. Aim: The study proposed to identify the concerns of siblings of pediatric palliative care (PPC) patients. Design and Measurement: Semistructured interviews were administered to participants and analyzed using qualitative inductive thematic analysis. Setting and Participants: Study subjects were 18 siblings of PPC patients aged 9 to 22 living in the Auckland area. Results: The siblings of PPC patients held concerns about their siblings' impending death and desires to be involved in their lives and care. Conclusions: Siblings may benefit from opportunities to be involved in conversations about mortality and the care of their ill sibling. They are able to express their concerns and help provide care to PPC patients.