Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions.

Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions.
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DOI:
10.1111/ecc.12432
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发表时间:
2017-01-01
影响因子:
2.1
通讯作者:
Patterson, P
Patterson, P
中科院分区:
医学3区
文献类型:
--
作者:
Ellis, S J;Wakefield, C E;Patterson, P

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本综述旨在(1)总结父母患有癌症的儿童/青少年(0-18岁)在疾病轨迹(诊断至丧亲)中的心理社会需求,(2)评估该人群的现有干预措施。对Medline、CINAHL、PsychInfo、EMBASE和Social Work Abstracts进行了系统检索,以查找1985年至2015年发表的文章。在检索到的98篇全文文章中,有12篇报道了儿童的社会心理需求,并确定了12项干预研究。根据混合方法评估工具对每篇文章进行了评估。在未来的干预发展中,有三个因素是需要考虑的关键:(1)儿童需要与年龄相适应的关于父母癌症的信息;(2)儿童需要与父母,家庭成员和卫生专业人员沟通的支持;(3)儿童需要一个他们感到舒适的环境,分享积极/消极的情绪,并可以在同龄人中正常化他们的经历。所有的干预研究报告至少有一个积极的结果,但是,只有五个报告显着改善儿童/家庭功能的基础上验证的量化措施/S。研究设计和质量的可变性,以及干预特征和结果变量的相当大的异质性限制了可以得出的结论。因此,显然有必要为面临父母癌症诊断的儿童进一步精心设计和科学评估干预措施。
This review aimed to (1) summarise the psychosocial needs of children/adolescents (0-18 years) with a parent with cancer across the illness trajectory (diagnosis to bereavement) and (2) evaluate existing interventions for this population. Medline, CINAHL, PsychInfo, EMBASE and Social Work Abstracts were systematically searched for articles published from 1985 to 2015. Of 98 full text articles retrieved, 12 reported on children's psychosocial needs, and 12 intervention studies were identified. Each article was appraised in accordance with the Mixed Method Appraisal Tool. Three factors emerged as critical to consider in future intervention development: (1) Children need age-appropriate information about their parent's cancer; (2) Children require support communicating with parents, family members and health professionals and (3) Children need an environment where they feel comfortable sharing positive/negative emotions and can have their experiences normalised among peers. All intervention studies reported at least one positive outcome, however, only five reported significant improvements in child/family functioning based on validated quantitative measure/s. Variability in study design and quality, combined with considerable heterogeneity in intervention characteristics and outcome variables limited the conclusions, which could be drawn. Therefore, further carefully designed and scientifically evaluated interventions for children facing a parent's cancer diagnosis are clearly warranted.