The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis
The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis
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DOI：
10.1093/rheumatology/keh030
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发表时间：
2004-03-01
期刊：
影响因子：
5.5
通讯作者：
Baghurst, PA
中科院分区：
文献类型：
--
作者：
Sawyer, MG;Whitham, JN;Baghurst, PA
目标。探讨幼年特发性关节炎（JIA）儿童的健康相关生活质量（HRQL）、疼痛经历和疼痛应对策略之间的关系。比较从儿童及其父母那里获得的描述这些变量的报告。方法。参与者是 59 名 8 至 18 岁的 JIA 儿童及其父母。家长和孩子完成了 PedsQL(TM) 通用核心量表和关节炎模块、Varni-Thompson 儿科疼痛问卷视觉模拟量表以及 Waldron/Varni 儿科疼痛应对量表。家长使用儿童健康评估问卷对孩子的功能障碍进行评级。结果。在评估儿童 HRQL 的八个 PedsQL(TM) 量表中，有五个量表中，父母报告的分数明显低于儿童（表明 HRQL 较差）。家长和孩子报告说，疼痛水平与评估儿童身体、情感和社交功能的 PedsQL(TM) 分数之间存在显着的负相关关系。他们还报告了几种疼痛应对量表的分数与 PedsQL(TM) 量表的分数之间存在显着的负相关关系。然而，这些关系的模式因父母和孩子的报告而异。结论。疼痛强度和疼痛应对策略与构成 JIA 儿童 HRQL 的多个领域具有显着且独立的关系。然而，父母和孩子对这些关系的性质有不同的看法。这些差异强调了临床医生从父母和孩子那里获取有关儿童 HRQL、疼痛水平和疼痛应对策略的信息的重要性。
Objectives. To investigate the relationship between health-related quality of life (HRQL), experience of pain and pain coping strategies in children with juvenile idiopathic arthritis (JIA). To compare reports describing these variables obtained from children and their parents.Methods. Participants were 59 children aged 8 to 18 yr with JIA and their parents. Parents and children completed the PedsQL(TM) generic core scales and arthritis module, the visual analogue scale of the Varni-Thompson Pediatric Pain Questionnaire, and the Waldron/Varni Pediatric Pain Coping Inventory. Parents rated children's functional disability using the Childhood Health Assessment Questionnaire.Results. Parents reported significantly lower scores (indicating worse HRQL) than children on five of the eight PedsQL(TM) scales rating children's HRQL. Parents and children reported a significant negative relationship between pain levels and the PedsQL(TM) scores assessing children's physical, emotional and social functioning. They also reported a significant negative relationship between scores on several pain coping scales and scores on the PedsQL(TM) scales. However, the pattern of these relationships varied for reports from parents and children.Conclusions. Pain intensity and pain coping strategies have a significant and independent relationship with several domains that comprise the HRQL of children with JIA. However, parents and children have differing perceptions of the nature of these relationships. The differences emphasize the importance of clinicians obtaining information about children's HRQL, pain levels and pain coping strategies from both parents and children.