Women's information needs about ductal carcinoma in situ before mammographic screening and after diagnosis:: a qualitative study
Women's information needs about ductal carcinoma in situ before mammographic screening and after diagnosis:: a qualitative study
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DOI：
10.1258/096914106778440581
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发表时间：
2006-01-01
影响因子：
2.9
通讯作者：
McPherson, Ann
中科院分区：
文献类型：
--
作者：
Prinjha, Suman;Evans, Julie;McPherson, Ann
目的 探讨筛查发现导管原位癌 (DCIS) 的女性对乳房 X 光检查信息提供的态度。设置 2003-2004 年期间在英国各地招募受访者。方法采用半结构式访谈进行定性研究。参与者 10 名因乳房 X 光检查诊断为 DCIS 的女性。结果 患有 DCIS 的女性在诊断前没有听说过这种情况。当被邀请进行常规筛查时，大多数人都希望了解有关 DCIS 的更多信息。有关乳房 X 光检查的益处和风险的全面信息，包括 DCIS 诊断的可能性，将使她们能够在参加筛查时做出充分知情的选择。结论 DCIS 是乳房 X 光检查不可避免的结果，在得到更好的理解之前，检查行业需要告知女性其存在以及对其自然史和管理缺乏了解。在筛查前警惕 DCIS 诊断的可能性以及与之相关的不确定性，可以更好地使女性就是否参加筛查做出充分知情的决定，并有助于减轻女性目前在诊断为 DCIS 时感受到的一些痛苦。
Objectives To explore the attitudes of women with screen-detected ductal carcinoma in situ (DCIS) towards information provision for mammographic screening.Setting Respondents recruited throughout the UK during 2003-2004.Methods Qualitative study using semi-structured interviews.Participants Ten women diagnosed with DCIS as a result of mammographic screening.Results None of the women with DCIS had heard of it before their diagnosis. Most would have liked more information about DCIS when invited for routine screening. Comprehensive information about the benefits and risks of mammographic screening, including the possibility of a DCIS diagnosis, would have enabled them to make a fully informed choice about attending for screening.Conclusion DCIS is an inescapable outcome of mammographic screening and, until it is better understood, the screening industry needs to inform women about its existence and the lack of understanding of its natural history and management. Being alerted before screening to the possibility of a DCIS diagnosis and the uncertainty associated with it would better enable women to make fully informed decisions about whether to attend and could help to alleviate some of the distress women currently feel when diagnosed with DCIS.