The impact of being a support provider to a person living in the community with a spinal cord injury
The impact of being a support provider to a person living in the community with a spinal cord injury
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DOI：
10.1037/0090-5550.50.4.397
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发表时间：
2005-11-01
影响因子：
2.7
通讯作者：
Gargaro, J
中科院分区：
文献类型：
--
作者：
Boschen, KA;Tonack, M;Gargaro, J
Objective: To examine the personal impact of being I support provider (SP) to a community-dwelling person with a spinal cord injury (SCI).Study Design: Quantitative phase (interview-completed questionnaire; n = 100), followed by qualitative phase (8 focus groups; n = 46).Participants: Convenience sample; self-selected subsample in focus groups.Main Outcome Measures: Productivity status, satisfaction with community integration, quality of life.Results: Supporting a person with SCI brings significant life change. Greater support provision was related to lower productivity and community integration of the SPs. They felt underserved and unprepared emotionally and cognitively for their new, unanticipated role.Conclusions: More attention, understanding, and service directed to SPs are required to reduce trial-and-error learning and emotional and physical burden. Enhanced injury resource materials, peer networks, and knowledge-building opportunities may ameliorate SP difficulties.
