Understanding context: A qualitative analysis of the roles of family caregivers of people living with cancer in Vietnam and the implications for service development in low-income settings
Understanding context: A qualitative analysis of the roles of family caregivers of people living with cancer in Vietnam and the implications for service development in low-income settings
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DOI：
10.1002/pon.5746
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发表时间：
2021-06-12
期刊：
影响因子：
3.6
通讯作者：
Santin, Olinda
中科院分区：
文献类型：
--
作者：
Ho, Hien Thi;Jenkins, Chris;Santin, Olinda
癌症患者家庭照顾者需求的研究仍然不成比例地集中在高收入背景下。这一研究差距增加了全球公平提供癌症护理的关键挑战。本研究介绍了家庭照顾者的癌症患者在越南的角色和可能的影响干预development.Methods的半结构化访谈和焦点小组与家庭照顾者（n = 20）和医疗保健提供者（n = 22）进行了两个国家的肿瘤医院。通过与代表越南不同地区的五家肿瘤医院的护理人员（n = 11）和医疗保健专业人员（n = 28）的研讨会验证了调查结果。数据进行了分析合作，由一个国际小组的研究人员根据专题analysis.Results在越南的家庭照顾者提供了一个不可或缺的作用，在提供住院癌症护理。在医院环境中，家庭负责多种角色，包括喂养、补水、更换、洗涤、移动、伤口护理和个人物品的安全。这一作用的核心是在治疗和临终关怀方面的主要决策;传递信息，提供营养，情感和经济支持。家庭被迫管理严重的并发症和医疗保健需求，最低限度的健康素养和有限的医疗保健专业input.Conclusions了解背景和独特的作用，家庭照顾者的癌症患者的支持服务的发展是至关重要的。随着心理肿瘤学在低收入和中等收入背景下的发展，家庭照顾者的角色至关重要。
Objectives Research on the needs of family caregivers of people living with cancer remains disproportionately focused in high income contexts. This research gap adds to the critical challenge on global equitable delivery of cancer care. This study describes the roles of family caregivers of people living with cancer in Vietnam and possible implications for intervention development.Methods Semi-structured interviews and focus groups with family caregivers (n = 20) and health care providers (n = 22) were conducted in two national oncology hospitals. Findings were verified via workshops with carers (n = 11) and health care professionals (n = 28) in five oncology hospitals representing different regions of Vietnam. Data was analyzed collaboratively by an international team of researchers according to thematic analysis.Results Family caregivers in Vietnam provide an integral role in the delivery of inpatient cancer care. In the hospital environment families are responsible for multiple roles including feeding, hydration, changing, washing, moving, wound care and security of personal belongings. Central to this role is primary decision making in terms of treatment and end-of-life care; relaying information, providing nutritional, emotional and financial support. Families are forced to manage severe complications and health care needs with minimal health literacy and limited health care professional input.Conclusions Understanding context and the unique roles of family caregivers of people living with cancer is critical in the development of supportive services. As psycho-oncology develops in low and middle income contexts, it is essential that family caregiver roles are of significant importance.