The palliative care needs of lung transplant candidates.
The palliative care needs of lung transplant candidates.
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肺移植候选人的姑息治疗需求。
DOI：
10.1111/ctr.14092
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发表时间：
2020
影响因子：
2.1
通讯作者：
Ersek,Mary
中科院分区：
文献类型：
--
作者：
Pawlow,PatriciaC;Blumenthal,NancyP;Christie,JasonD;Matura,LeaAnn;Courtright,KatherineR;Aryal,Subhash;Ersek,Mary
背景：对于等待肺移植的患者的姑息治疗需求知之甚少。本研究的目的是描述正在接受或等待肺移植评估的患者的这些需求。方法在美国的一个移植项目中，使用一种改编版的生命末期筛查工具（NEST - 13）进行横断面调查。在111名参与者中，83.5%为白人，60.0%为女性，几乎四分之三患有限制性或阻塞性肺疾病。最大的缓和治疗需求包括身体活动困难（平均值：7.9/10;SD: 2.6；中位数：9.0），身体症状（平均值：7.4/10;SD: 2.6；中位数：8.0），因病缺勤（平均值：6.2/10;SD: 4.0；中位数：8.0），以及担心生命可能结束（平均值：5.1/10;SD: 3.6；中位数：5.0）。参与者报告说，宗教/精神信仰有助于他们的目标感（平均值：4.1/10；标准差：3.9），但在这方面几乎没有未满足的需求（平均值：0.9/10；中位数：0.0）。只有6.4%的人报告看了姑息治疗专家，48.2%的人不确定姑息治疗专家是什么。结论：在肺移植候选者中存在大量的姑息治疗需求，特别是身体症状和临终关怀。这些发现支持在肺移植候选人的管理中整合姑息治疗和临终讨论。
BackgroundLittle is known about the palliative care needs of patients awaiting lung transplantation. The aim of this study was to describe these needs in patients undergoing evaluation for or awaiting lung transplantation.MethodsCross‐sectional survey using an adapted version of the Needs at the End‐of‐life Screening Tool (NEST‐13) at a US‐based transplant program.ResultsAmong the 111 participants, 83.5% were White, 60.0% were female, and almost three‐quarters had either restrictive or obstructive lung disease. The greatest palliative care needs included difficulty being physically active (mean: 7.9/10; SD: 2.6; median: 9.0), physical symptoms (mean: 7.4/10; SD: 2.6; median: 8.0), missing work due to illness (mean: 6.2/10; SD: 4.0; median: 8.0), and concerns that life might end (mean: 5.1/10; SD: 3.6; median: 5.0). Participants reported that religious/spiritual beliefs contribute to their sense of purpose (mean: 4.1/10; SD: 3.9) but had few unmet needs in this area (mean: 0.9/10; median: 0.0). Only 6.4% reported seeing a palliative care specialist, and 48.2% were unsure what a palliative care specialist is.ConclusionThere are substantial palliative care needs among lung transplant candidates, particularly physical symptoms and end‐of‐life concerns. These findings support integrating palliative care and end‐of‐life discussions in the management of lung transplant candidates.