Infertility Education: Experiences and Preferences of Childhood Cancer Survivors
Infertility Education: Experiences and Preferences of Childhood Cancer Survivors
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DOI：
10.1177/1043454215607342
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发表时间：
2016-07-01
影响因子：
1.7
通讯作者：
Meacham, Lillian R.
中科院分区：
文献类型：
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作者：
Cherven, Brooke O.;Mertens, Ann;Meacham, Lillian R.
大多数被诊断患有癌症的儿童将成为长期幸存者;然而，许多人将遭受治疗的晚期影响，包括不孕症。教育患者有关不孕症的潜在风险是重要的，但很少有人知道患者何时愿意听到这些信息。本研究的目的是评估年轻成年幸存者以前接受不孕风险教育的经验，并确定他们在治疗期间和治疗后不同时间点对不孕教育的偏好。只有36%的幸存者报告在诊断时接受了有关不孕风险的教育，39%在治疗结束时接受了教育，72%在长期随访/幸存者诊所就诊时接受了教育。在每个时间点，幸存者一致认为他们的肿瘤学家是首选的教育者。虽然几乎所有的参与者都在诊断时确定想要接受教育，但仅这个时间点可能还不够。治疗结束和生存期可能是这个信息应该重复和适应幸存者的需求和发展阶段的时候：关于癌症治疗对未来生育能力影响的对话应该持续进行。
The majority of children diagnosed with cancer will become long-term survivors; however, many will suffer late effects of treatment, including infertility. Educating patients about potential risk for infertility is important, yet little is known regarding when patients would like to hear this information. The purpose of this study was to assess young adult survivors' previous experience in receiving education about their risk for infertility and determine their preferences for infertility education at various time points during and after treatment. Only 36% of survivors report receiving education about risk for infertility at diagnosis, 39% at end of therapy, and 72% in long-term follow-up/survivor clinic visits. Survivors consistently identified their oncologist as a preferred educator at each time point. Although almost all participants identified wanting education at diagnosis, this time point alone may not be sufficient. End of therapy and survivorship may be times this message should be repeated and adapted for the survivor's needs and developmental stage: conversations about the impact of cancer treatment on future fertility should be ongoing.