A question prompt sheet for adult patients with chronic kidney disease.
A question prompt sheet for adult patients with chronic kidney disease.
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DOI：
10.1186/s12882-016-0362-z
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发表时间：
2016-10-19
期刊：
影响因子：
2.3
通讯作者：
Gordon EJ
中科院分区：
文献类型：
--
作者：
Lederer S;Fischer MJ;Gordon HS;Wadhwa A;Popli S;Gordon EJ
慢性肾脏病（CKD）患者通常有未满足的信息需求。患者更多地参与医疗保健讨论可以满足这些需求并改善健康结果。我们开发了一个以患者为中心的问题提示表（QPS），让CKD患者参与医疗保健对话。我们进行了两个阶段，混合方法，横断面研究，包括半结构化的电话采访。从一家退伍军人事务部（VA）肾病诊所招募肾小球滤过率（eGFR）估计值<60 ml/min/1.73 m2、接受透析或接受肾移植的患者。第1阶段访谈包括评估患者CKD相关信息需求的开放式问题，并生成初步的67项QPS。第2阶段访谈参与者根据5分制Likert量表对每个问题的重要性进行评分，并提供开放式反馈。所有参与者都对他们使用CKD-QPS的意愿进行了评级。来自患者评级、多学科团队和国家肾脏病教育计划（NKDEP）协调小组成员的输入有助于缩短和完善QPS。一个定性的主题方法被用来分析开放式的反应。分析定量数据的平均值和比例。85名患者参加了研究。大多数为男性（97%），非西班牙裔白色（71%），平均年龄为67岁。患者希望获得更多关于CKD的信息，特别是透析/移植，以及CKD与合并症之间的关系。最终QPS包括31个问题，分为7个CKD子主题。大多数患者（88%）报告称在未来的医生访视中“完全”或“非常”愿意使用CKD-QPS。CKD患者的信息需求未得到满足。我们开发了一个QPS，让CKD患者参与医疗保健讨论，并促进以患者为中心的护理。未来的研究应评估CKD-QPS是否满足了患者的信息需求、增强了医患沟通并改善了健康结果。本文的在线版本（doi：10.1186/s12882-016-0362-z）包含补充材料，可供授权用户使用。
Patients with chronic kidney disease (CKD) commonly have unmet information needs. Greater patient participation in healthcare discussions can address these needs and improve health outcomes. We developed a patient-centered question prompt sheet (QPS) to engage CKD patients in healthcare conversations. We conducted a two phase, mixed-methods, cross-sectional study involving semi-structured telephone interviews. Patients with an estimated glomerular filtration rate (eGFR) <60 ml/min/1.73 m2, on dialysis, or with a kidney transplant were recruited from one Veterans Affairs (VA) nephrology clinic. Phase 1 interviews included open-ended questions assessing patients’ CKD-related information needs and generated a preliminary 67-item QPS. Phase 2 interview participants rated the importance of asking each question on a 5-point Likert scale and provided open-ended feedback. All participants rated their willingness to use a CKD-QPS. Input from patient ratings, a multidisciplinary team, and from members of the National Kidney Disease Education Program (NKDEP) Coordinating Panel helped to shorten and refine the QPS. A qualitative thematic approach was used to analyze open-ended responses. Quantitative data were analyzed for means and proportions. Eighty-five patients participated. Most were male (97 %), non-Hispanic white (71 %), and mean age was 67 years. Patients desired more information about CKD, particularly dialysis/transplant, and the relationship between CKD and comorbid medical conditions. The final QPS included 31-questions divided into 7 CKD subtopics. Most patients (88 %) reported being ‘completely’ or ‘very’ willing to use a CKD-QPS in future doctor visits. CKD patients have unmet information needs. We developed a QPS to engage CKD patients in healthcare discussions and to facilitate patient-centered care. Future research should assess whether the CKD-QPS addresses patients’ information needs, enhances doctor-patient communication, and improves health outcomes. The online version of this article (doi:10.1186/s12882-016-0362-z) contains supplementary material, which is available to authorized users.
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发表时间：
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期刊：
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影响因子：
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