The unfinished body: The medical and social reshaping of disabled young bodies

The unfinished body: The medical and social reshaping of disabled young bodies
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DOI:
10.1016/j.socscimed.2014.09.012
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发表时间:
2014-11-01
影响因子:
5.4
通讯作者:
Coleman-Fountain, Edmund
Coleman-Fountain, Edmund
中科院分区:
医学2区
文献类型:
--
作者:
McLaughlin, Janice;Coleman-Fountain, Edmund

文献摘要

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关于残疾的故事在很大程度上受到医学和社会提供的叙述的影响。这些叙述制定了一个“异常”的身体,是远离规范,因此“损坏”,但也固定。在本文中,我们将探讨如何这样的叙述,以及他们所包含的做法,影响残疾年轻人告诉他们的身体和损伤的故事。我们这样做是通过利用叙事定性访谈和视觉实践进行了17个残疾青年在一个项目资助的经济和社会研究理事会,发生在2011年和2012年之间在英格兰东北部。这里讨论的研究结果集中在医疗和社会对身体差异的反应如何成为残疾年轻人讲述自己身体的故事的一部分,并影响他们与身体合作的方式,因为身体仍然是“未完成的”,因此既可修复又有缺陷。我们的结论是,一个未完成的身体的叙事产生,因为年轻人管理他们的身体是他们新兴的身份不可或缺的东西,但也作为一个潜在的威胁,可能会破坏和放弃他们的劳动,使一个“普通”的功能身体和生活。本文有助于医疗社会学和社会学的身体产生新的知识如何残疾的体现是生活和框架的残疾年轻人在不断尝试改变身体的背景下。(C)2014作者爱思唯尔有限公司出版
Stories about disability are heavily shaped by the narratives offered by medicine and society. Those narratives enact an 'anomalous' body that is constructed as distant from the norm and therefore 'damaged' but also fixable. In this paper we explore how such narratives, and the practices they encompass, influence the stories disabled young people tell about their bodies and impairment. We do so by drawing on narrative qualitative interviews and visual practices carried out with seventeen disabled young people in a project funded by the Economic and Social Research Council that took place between 2011 and 2012 in the North East of England. The findings discussed here focus on how medical and societal responses to bodily difference become part of the stories disabled young people tell about their bodies, and influence the way they work with the body as something which remains 'unfinished' and therefore both fixable and flawed. Our conclusion is that a narrative of an unfinished body is produced, as young people manage their bodies as something that is integral to their emerging identity, but also as a potential threat that could undermine and give away their labour in making an 'ordinary' functioning body and life. The paper contributes to medical sociology and sociology of the body by producing new knowledge about how disabled embodiment is lived and framed by disabled young people in the context of ongoing attempts to change the body. (C) 2014 The Authors. Published by Elsevier Ltd.