Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom.
Dying to be home? Preferred location of death of first-generation black Caribbean and native-born white patients in the United Kingdom.
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DOI：
10.1089/jpm.2004.7.628
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发表时间：
2004-10-01
影响因子：
2.8
通讯作者：
Higginson, Irene J
中科院分区：
文献类型：
--
作者：
Koffman, Jonathan;Higginson, Irene J
尽管人们对一般人群对死亡地点的偏好进行了研究，但对来自不同种族背景的人的经历知之甚少，对居住在英国的加勒比黑人人口也一无所知。在超过 13 个月的时间里，我们对已故的第一代加勒比黑人和患有晚期疾病的本土白人患者的家人和朋友进行了调查。在确定的 106 名加勒比黑人和 110 名白人患者中，每个种族进行了 50 次访谈，答复率为 47% 和 45%。结果发现，所有接受调查的患者中有 21% 死于自己家中，61% 死于医院，12% 死于临终关怀医院，6% 死于住宅/疗养院。据报道，34% 的加勒比黑人患者表达了对死亡地点的偏好，而其中 80% 以上的患者希望在家中去世，而本地出生的白人患者这一比例为 27%。来自加勒比地区（53%）和白人（56%）的患者群体中想要在家中死去的比例相似。这与患者日常生活活动的限制或自我报告的护理负担无关。与白人患者相比，代表加勒比地区的受访者较少表示，他们 (chi(2) = 8.9，p = 0.01) 或已故患者 (chi(2) = 8.6，p = 0.03) 对于死亡地点没有足够的选择。我们的研究结果表明：（1）需要改进讨论护理和治疗选择（包括死亡地点）的培训，以及（2）对可能促进或预防家庭死亡的文化和其他因素有更深入的定性了解。
Although preference for location of death has been studied in the general population little is known about the experience of people from different ethnic backgrounds and nothing about the black Caribbean population living in the United Kingdom. Over 13 months we surveyed the family and friends of deceased first-generation black Caribbean and native-born white patients with advanced disease. Of the 106 black Caribbean and 110 white patients identified, 50 interviews per ethnic group were conducted, a response rate of 47% and 45%. It was found that 21% of all patients surveyed died in their own home, 61% in hospital, 12% in a hospice, and 6% in a residential/nursing home. Thirty-four percent of black Caribbean compared to 27% native-born white patients were reported to have expressed a preference for location of death and of these over 80% of all patients wanted to die at home. Similar proportions of patients from the Caribbean (53%) and white (56%) patient groups who wanted to die at home did so. This was not related to restrictions in patients' activities of daily living or self-reported caregiver burden. Fewer respondents representing Caribbean than white patients stated that neither they (chi(2) = 8.9, p = 0.01) or the deceased patients (chi(2) = 8.6, p = 0.03) were given sufficient choice about the location of death. Our findings suggest: (1) a need to improve training in discussing care and treatment choices, including location of death, and (2) a deeper qualitative understanding of the cultural and other factors that may facilitate or prevent home deaths.