Quality of Life: Its Application to Persons With Intellectual Disabilities and Their Families-Introduction and Overview
Quality of Life: Its Application to Persons With Intellectual Disabilities and Their Families-Introduction and Overview
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DOI：
10.1111/j.1741-1130.2008.00202.x
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发表时间：
2009-03-01
影响因子：
1.7
通讯作者：
Brown, Ivan
中科院分区：
文献类型：
--
作者：
Brown, Roy I.;Schalock, Robert L.;Brown, Ivan
作者概述了智力残疾（ID）领域的生活质量（QoL）概念化，提供了背景信息，并设置了一个组织框架，用于提出应用QoL的概念和具体想法。这个框架是有用的三个广泛的类别的应用程序在ID的领域，形成的应用程序的生活质量的个人，群体的个人，和家庭。因此，生活质量可以被用作一个敏感的概念，从个人的角度来看，提供了一个参考和指导的意义，专注于个人和个人的环境，并提供了一个框架，概念化，测量和应用生活质量结构。应用程序还为QoL研究制定了评估策略。作者得出结论，有必要以积极主动的方式从文献中识别相关的生活质量证据，并确保其方法学合理，提供定量和定性数据，代表个体间和个体内的变异性，并说明寿命和文化背景的变化。
The authors provide an overview of quality of life (QoL) conceptualization in the field of intellectual disabilities (ID), provide background information, and set an organizing framework for presenting concepts and concrete ideas for applying QoL. This framework is useful for three broad categories of application in the field of ID that form the application of QoL to individuals, groups of individuals, and to families. QoL thus can be used as a sensitizing notion that gives a sense of reference and guidance from the individual's perspective, focusing on the person and the individual's environment and provides a framework for conceptualizing, measuring, and applying the QoL construct. The applications also frame evaluation strategies for QoL research. The authors conclude that there is a need to identify relevant QoL evidence from the literature in a proactive way, and to ensure that it is methodologically sound, provides both quantitative and qualitative data, represents inter- and intra-individual variability, and illustrates changes over both the lifespan and across cultural settings.