Families' recommendations for improving services for children with chronic conditions.
Families' recommendations for improving services for children with chronic conditions.
复制标题
家庭关于改善慢性病儿童服务的建议。
DOI：
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复制
发表时间：
1998
影响因子：
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通讯作者：
R. Blum
中科院分区：
文献类型：
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作者：
A. Garwick;C. Kohrman;C. Wolman;R. Blum
背景
从来自不同文化背景的家庭照顾者的角度，对慢性病儿童及其家庭的服务和方案进行了很少的研究。
目的
确定来自3个主要民族文化背景的城市留守家庭对改善慢性病儿童（即慢性病和涉及身体健康损害的残疾）护理的建议。
设计
以社区为基础的定性研究。
设置
一般社区。
参与者
志愿者便利样本包括来自2个中西部城市的21个非洲裔美国人，20个西班牙裔美国人和22个欧洲裔美国人家庭，他们照顾患有慢性病的学龄儿童。
方法
在家里半结构化的采访进行了与每个孩子的家庭照顾者。内容分析技术被用来识别和分类来自63个家庭的275个建议。
结果
家庭关注以下4个主题：（1）提高医疗保健服务的质量;（2）减少服务和计划的障碍;（3）改善医疗保健专业人员，家庭和公众接受的关于慢性病及其管理的培训;（4）提高社区服务的质量和可用性。来自所有3个族裔群体的家庭都有类似的建议，以改善服务和方案;然而，一些非洲裔美国人和西班牙裔家庭也建议使信息更具文化相关性，并使来自不同文化背景的家庭更容易获得资源。
结论
调查结果表明，需要做进一步的工作，以提供真正以家庭为中心和文化敏感的护理。家庭的建议提供了信息，卫生保健专业人员和政策制定者可以用来将有关以家庭为中心的护理的言论转化为行动。
BACKGROUND
Little research has been done on services and programs for children with chronic conditions and their families from the perspective of family caregivers from diverse cultural backgrounds.
OBJECTIVE
To identify recommendations that urban caregiving families from 3 major ethnocultural backgrounds have for improving the care of children with chronic conditions (ie, chronic illnesses and disabilities involving physical health impairments).
DESIGN
Qualitative, community-based study.
SETTING
General community.
PARTICIPANTS
The volunteer convenience sample included 21 African American, 20 Hispanic, and 22 European American families from 2 midwestern cities who care for school-aged children with chronic conditions.
METHODS
In-home semistructured interviews were conducted with each child's family caregivers. Content analytic techniques were used to identify and classify 275 recommendations from 63 families.
RESULTS
Families focused on the following 4 topics: (1) improving the quality of health care services; (2) decreasing barriers to services and programs; (3) improving the training that health care professionals, families, and the public receive about chronic conditions and their management; and (4) improving the quality and availability of community-based services. Families from all 3 ethnic groups had similar recommendations for improving services and programs; however, several African American and Hispanic families also suggested making information more culturally relevant and resources more accessible to families from diverse cultural backgrounds.
CONCLUSIONS
The findings indicate that further work needs to be done to deliver care that is, indeed, family centered and culturally sensitive. Families' recommendations provide information that health care professionals and policymakers can use to transform rhetoric about family-centered care into action.