Communication online with fellow cancer patients: Writing to be remembered, gain strength, and find survivors
Communication online with fellow cancer patients: Writing to be remembered, gain strength, and find survivors
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DOI：
10.1177/1359105312465915
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发表时间：
2013-12-01
影响因子：
3.2
通讯作者：
Hsieh, Yu-Ling
中科院分区：
文献类型：
--
作者：
Chiu, Yu-Chan;Hsieh, Yu-Ling
这项定性研究探讨了癌症患者在互联网上的写作和阅读如何在他们的疾病经历中发挥作用。进行了焦点小组访谈，有34名癌症患者参与。采用扎根定性分析方法对访谈笔录进行分析。结果表明，癌症患者通过撰写个人博客，重构了自己的人生故事，表达了自己生命的终结，并期望在死后被人记住。在网上阅读其他癌症患者的故事显著影响了癌症患者对自己疾病预后的看法和期望，这种影响有时比医生的影响更大。
This qualitative research explored how cancer patients' writing and reading on the Internet play a role in their illness experience. Focus-group interviews were conducted, with 34 cancer patients participating. A grounded qualitative analysis method was applied to analyze the interview transcripts. The results show that by writing personal blogs, cancer patients reconstructed their life story, expressed their closure of life, and expected to be remembered after death. Reading fellow cancer patients' stories online significantly influenced cancer patients' perceptions and expectations of their own illness prognosis, and that influence was sometimes greater than that of the doctors' influence.