Facilitating public and patient involvement in basic and preclinical health research
Facilitating public and patient involvement in basic and preclinical health research
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DOI：
10.1371/journal.pone.0216600
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发表时间：
2019-05-14
期刊：
影响因子：
3.7
通讯作者：
Dorris, Emma R.
中科院分区：
文献类型：
--
作者：
Maccarthy, James;Guerin, Suzanne;Dorris, Emma R.
让患者参与研究可以拓宽研究人员的影响领域，并可能产生新的想法。临床前研究是创新医疗发展不可或缺的一部分。这些不是面向患者的学科，实施有意义的公众和患者参与（PPI）可能是一个挑战。一个讨论论坛和专题分析确定了实施临床前研究人员的公众和患者参与的关键挑战。作为回应，我们开发了一个“PPI就绪”规划画布。对于公众和患者参与的同期评价，心理测量问卷和开源工具，其评价开发。调查表衡量信息、程序和质量评估。结合开源评估工具，如果公众和患者的参与在这些领域中的任何一个都不令人满意，研究人员就会得到通知。该工具易于使用，并将心理测试调整为临床前科学家熟悉的格式。设计用于在研究项目中迭代使用，它提供了一个简单的报告等级，以记录研究生命周期中的满意度趋势。
Involving patients in research broadens a researcher's field of influence and may generate novel ideas. Preclinical research is integral to the progression of innovative healthcare. These are not patient-facing disciplines and implementing meaningful public and patient involvement (PPI) can be a challenge. A discussion forum and thematic analysis identified key challenges of implementing public and patient involvement for preclinical researchers. In response we developed a "PPI Ready" planning canvas. For contemporaneous evaluation of public and patient involvement, a psychometric questionnaire and an open source tool for its evaluation were developed. The questionnaire measures information, procedural and quality assessment. Combined with the open source evaluation tool, researchers are notified if public and patient involvement is unsatisfactory in any of these areas. The tool is easy to use and adapts a psychometric test into a format familiar to preclinical scientists. Designed to be used iteratively across a research project, it provides a simple reporting grade to document satisfaction trend over the research lifecycle.