Informal caregivers' burden and stress in caring for stroke survivors with spatial neglect: an exploratory mixed-method study
Informal caregivers' burden and stress in caring for stroke survivors with spatial neglect: an exploratory mixed-method study
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DOI：
10.1080/10749357.2016.1186373
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发表时间：
2017-01-01
影响因子：
2.2
通讯作者：
Hreha, Kimberly
中科院分区：
文献类型：
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作者：
Chen, Peii;Fyffe, Denise C.;Hreha, Kimberly
背景：空间忽视延长了中风幸存者恢复独立的时间。然而，空间忽视对卒中幸存者照顾者的影响却知之甚少。目的：探讨卒中幸存者存在空间忽视的非正式照顾者负担和压力的相关因素。方法：在先前对108名卒中幸存者进行研究的基础上，我们获得了24名卒中幸存者照顾者，其中20名照顾者(年龄：M+/-SD=56.9+/-12.7岁；12名女性)完成了研究。10名幸存者在住院康复出院时有空间忽视症状，10名幸存者没有空间忽视症状(分别为SN+或SN-)，即本研究前9.3+/-6.2个月。结果：不同照顾者群体在认知功能、抑郁情绪、社区流动性等方面没有差异。相比之下，SN+组的照顾者分配了更多的时间进行护理，控制了幸存者的残疾(调整后的有效大小d=1.80)。他们的自我感觉到的负担和压力比其他组更重(调整后的d=0.99)。定性分析表明，SN+组的照顾者更有可能描述经济压力来源以及职业和假期规划中的不良变化。虽然80%的参与者更喜欢他们的照顾者接受额外的运动或活动治疗，但SN+组的照顾者更有可能建议对认知障碍进行额外的治疗。结论：这项探索性研究表明，空间忽视可能会增加照顾者的负担和压力水平。未来需要进行大样本量的研究。
Background: Spatial neglect prolongs stroke survivors' recovery to independence. However, little is known about the impact of spatial neglect on caregivers of stroke survivors.Objective: To explore the factors associated with burden and stress among informal caregivers of stroke survivors with spatial neglect.Methods: Following the previous study of 108 stroke survivors, we reached 24 stroke survivors' caregivers, and 20 caregivers (age: M +/- SD=56.9 +/- 12.7 years; 12 females) completed the study. 10 survivors had symptoms of spatial neglect, and 10 did not (i.e., SN+ or SN-, respectively) at the time when discharged from inpatient rehabilitation, which was 9.3 +/- 6.2 months before the present study. Via a semi-structured telephone interview, we assessed caregivers' burden and stress qualitatively and quantitatively.Results: No difference was observed across caregiver groups in cognitive function, depressive mood, or community mobility. In comparison, caregivers of the SN+ group allocated more time to care, controlling for survivors' disability (adjusted effective size d = 1.80). Their self-perceived burden and stress were more severe than the other group (adjusted d = .99). Qualitative analysis indicated caregivers of the SN+ group were more likely to describe economic stressors and undesirable changes in career and vacation planning. While 80% of participants preferred their care recipients to receive additional motor or mobility therapy, caregivers of the SN+ group were more likely to suggest additional therapy for cognitive impairment.Conclusions: This exploratory study suggests that spatial neglect may heighten caregivers' burden and stress levels. Future studies with a large sample size are required.