Preparing for the future: multi-stakeholder perspectives on autonomous goal setting for adolescents with autism spectrum disorders
Preparing for the future: multi-stakeholder perspectives on autonomous goal setting for adolescents with autism spectrum disorders
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DOI：
10.1080/09638288.2017.1334836
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发表时间：
2018-01-01
影响因子：
2.2
通讯作者：
Park, Elly
中科院分区：
文献类型：
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作者：
Hodgetts, Sandra;Richards, Kathryn;Park, Elly
目的：自我决定与许多积极的结果有关，包括改善自闭症谱系障碍青少年的社会包容性和生活质量。自主参与治疗目标设定是自我决定的重要组成部分。本研究考察了自闭症谱系障碍青少年、自闭症谱系障碍青少年父母和跨学科专业人员对自主目标设定的认知和障碍。方法：对三个焦点小组(每个关键利益相关者一人)和一个亲子联合访谈进行研究。所有的讨论都被录音，逐字转录，并根据Braun和Clarke(2006)概述的方法进行主题分析。结果：共有7名父母(6名母亲，1名父亲)，4名患有自闭症谱系障碍的青少年和10名专业人员参与了研究。与当前目标设定经验相关的三个主题：(1)目的，(2)障碍，(3)类型。结论：目前，自闭症谱系障碍青少年很少积极参与目标设定过程。本研究从多个利益相关者的角度，对自闭症谱系障碍青少年自主目标设置的障碍、认知和现状提供了新的数据。
Purpose: Self-determination is linked to numerous positive outcomes including improved social inclusion and quality of life for adolescents with autism spectrum disorder. Autonomous participation in therapeutic goal setting is an important component of self-determination. This study examined perceptions of, and barriers to, autonomous goal setting as perceived by: (1) adolescents with autism spectrum disorder, (2) parents of adolescents with autism spectrum disorder, and (3) interdisciplinary professionals.Method: Three focus groups (one with each of the key stakeholders) and one joint parent and child interview were conducted. All discussions were audio-recorded, transcribed verbatim and thematically analyzed based on the methods outlined by Braun and Clarke (2006).Results: A total of 7 parents (6 mothers, 1 father), 4 youth with autism spectrum disorder, and 10 professionals participated in the study. Three themes related to current experiences with goal setting emerged: (1) purpose, (2) barriers, and (3) types.Conclusions: Currently, adolescents with autism spectrum disorder are rarely active participants in the goal setting process. This study provides novel data, from the perspectives of multiple stakeholders, about barriers, perceptions, and actualities related to autonomous goal setting for adolescents with autism spectrum disorder.