Experiences of HIV stigma: The role of visible symptoms, HIV centrality and community attachment for people living with HIV
Experiences of HIV stigma: The role of visible symptoms, HIV centrality and community attachment for people living with HIV
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DOI：
10.1080/09540121.2012.752784
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发表时间：
2013-09-01
影响因子：
1.7
通讯作者：
de Wit, John
中科院分区：
文献类型：
--
作者：
Brener, Loren;Callander, Denton;de Wit, John
对于许多艾滋病毒感染者（PLHIV）来说，披露或隐瞒其艾滋病毒状况可能在他们的个人控制之下;然而，对于有明显症状的PLHIV，披露可能不再是一种选择。先前的研究表明，那些有明显艾滋病毒症状的人比那些没有明显艾滋病毒症状的人的身心健康状况更差。本研究旨在扩展这些研究结果，并评估艾滋病毒在PLHIV生活中的感知中心地位的作用，以及对艾滋病毒阳性社区的依恋在理解对具有明显艾滋病毒症状的PLHIV健康和福祉的负面影响方面的作用。参与者是697 PLHIV谁完成了一项在线调查，评估症状的可见性，艾滋病毒状态披露，感知的耻辱，健康和福祉，如何中央艾滋病毒是身份和艾滋病毒社区附件。结果表明，那些有明显症状的人经历了更多的艾滋病毒相关的耻辱，并在一系列心理和精神健康措施的结果比那些谁能够隐藏他们的耻辱。在控制了自诊断以来的时间长度、艾滋病毒治疗时间、健康满意度和年龄之后，这些影响仍然存在。有明显症状的艾滋病毒感染者还报告说，艾滋病毒对他们的身份更为重要，并报告说他们对艾滋病毒阳性社区有更大的依恋。此外，研究结果表明，虽然艾滋病毒中心似乎增加了与艾滋病毒相关的明显症状的负面影响，但更大的社区依恋似乎可以减轻这些影响。这表明需要对可见的HIV症状对PLHIV的影响进行细致入微的理解。该研究还强调了艾滋病毒阳性社区依恋在缓冲艾滋病毒感染者免受可见艾滋病毒症状对其健康和福祉的负面影响方面的潜在好处。
For many people living with HIV (PLHIV), disclosure or concealment of their HIV status may be under their personal control; however, for PLHIV with visible symptoms of their illness, disclosure may no longer be a choice. Previous research suggests that those with visible HIV symptoms have poorer mental and physical health than those without visible HIV symptoms. This study aimed to extend these findings and assess the role of perceived centrality of HIV in the lives of PLHIV as well as the role of attachment to an HIV-positive community in understanding the negative effects on health and well-being for PLHIV with visible HIV symptoms. Participants were 697 PLHIV who completed an online survey that assessed symptom visibility, HIV-status disclosure, perceived stigma, health and well-being, how central HIV was to identity and HIV community attachment. Results indicate that those with visible symptoms experienced more HIV-related stigma and had poorer outcomes on a range of psychological and mental health measures than those who were able to conceal their stigma. These effects remained after controlling for length of time since diagnosis, time on HIV treatment, perceived health satisfaction and age. PLHIV with visible symptoms also reported that HIV was more central to their identity and reported greater attachment to an HIV-positive community. Furthermore, findings suggest that while HIV centrality appears to increase the negative effects of having visible symptoms associated with HIV, greater community attachment seems to ameliorate these effects. This suggests the need for a nuanced understanding of the implications of visible HIV symptoms for PLHIV. The study also highlights the potential benefits of HIV-positive community attachment in buffering PLHIV from the negative effect of visible HIV symptoms on their health and well-being.