Data Sharing and Cardiology Platforms and Possibilities
Data Sharing and Cardiology Platforms and Possibilities
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DOI：
10.1016/j.jacc.2017.10.037
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发表时间：
2017-12-19
影响因子：
24
通讯作者：
Krumholz, Harlan M.
中科院分区：
文献类型：
--
作者：
Dey, Pranammya;Ross, Joseph S.;Krumholz, Harlan M.
共享未确定的患者水平的研究数据为所有参与心脏病学研究和实践的利益相关者提供了巨大的机会。数据共享鼓励利用现有数据产生知识以改进实践，同时也允许对传播的研究进行验证。在本综述中，我们讨论了有助于加快数据共享进程的关键举措和平台。这些努力是由政府、大学、研究的慈善赞助者、主要行业参与者以及其中一些实体之间的合作推动的。随着数据共享成为一种更普遍的期望，将需要改变政策，以鼓励和协助数据生成器共享其创建的数据。患者还需要获得他们自己的数据，并有权与研究人员分享这些数据。虽然医学在实现数据共享的全部潜力方面仍落后于其他领域，但心脏病学研究有可能引领这一潮流。(C) 2017年由美国心脏病学会基金会发布。
Sharing deidentified patient- level research data presents immense opportunities to all stakeholders involved in cardiology research and practice. Sharing data encourages the use of existing data for knowledge generation to improve practice, while also allowing for validation of disseminated research. In this review, we discuss key initiatives and platforms that have helped to accelerate progress toward greater sharing of data. These efforts are being prompted by government, universities, philanthropic sponsors of research, major industry players, and collaborations among some of these entities. As data sharing becomes a more common expectation, policy changes will be required to encourage and assist data generators with the process of sharing the data they create. Patients also will need access to their own data and to be empowered to share those data with researchers. Although medicine still lags behind other fields in achieving data sharing's full potential, cardiology research has the potential to lead the way. (C) 2017 by the American College of Cardiology Foundation.