Perceptions of cardiovascular health in an underserved community of deaf adults using American Sign Language
Perceptions of cardiovascular health in an underserved community of deaf adults using American Sign Language
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DOI：
10.1016/j.dhjo.2011.04.001
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发表时间：
2011-07-01
影响因子：
4.5
通讯作者：
Chin, Nancy P.
中科院分区：
文献类型：
--
作者：
McKee, Michael;Schlehofer, Deirdre;Chin, Nancy P.
背景：心血管疾病在美国的总体死亡率和发病率中居首位。少数群体和服务不足的群体之间的心血管差异仍然很大。聋哑人美国手语 (ASL) 用户是一个服务不足且研究不足的群体，由于语言和沟通障碍，他们很少受到研究人员的关注。最近在纽约州罗切斯特市进行的一项美国手语调查表明，聋人参与者的心血管风险更高。该研究的目的是调查聋人 ASL 使用者对心血管疾病的风险认知，将这种认知与聋人文化和沟通的特征联系起来。这些信息将用于为未来促进聋人成年人心血管健康的策略提供信息。方法和参与者：在纽约州罗彻斯特开展了四个焦点小组活动，有 22 名 ASL 聋人参与者。录像会议由双语研究人员翻译和转录。一组研究人员对数据进行编码、分析和识别关键主题。主要结果：主题集中在五个主要领域：知识、障碍、促进因素、实践和传播。大多数主题集中在障碍和知识上。障碍包括由于语言和沟通挑战、财务限制和压力而缺乏医疗保健信息。心血管健康的许多关键领域出现了不一致的知识。结论：该研究概述了提高聋人 ASL 使用者心血管健康知识和认知的关键主题。研究结果表明，提供 ASL 健康教育计划和信息对于最大限度地提高理解和减少误解非常重要。在照顾聋人 ASL 使用者时，提供者应付出额外的努力来询问心血管危险因素并确认患者对这些因素的了解。 (C) 2011 Elsevier Inc. 保留所有权利。
Background: Cardiovascular disease leads in overall mortality and morbidity in the United States. Cardiovascular disparities remain high among minority and underserved groups. Deaf American Sign Language (ASL) users are an underserved and understudied group that receives little attention from researchers due to language and communication barriers. A recent ASL survey in Rochester, NY, indicated greater cardiovascular risk among Deaf participants. The study objective was to investigate risk perceptions of cardiovascular disease among Deaf ASL users, linking perceptions to features of Deaf culture and communication. This information will be used to inform future strategies to promote cardiovascular health among Deaf adults.Methods and Participants: Four focus groups were conducted in Rochester, New York, with 22 Deaf participants in ASL. Videotaped sessions were translated and transcribed by a bilingual researcher. A team of investigators coded, analyzed, and identified key themes from the data.Main Results: Themes centered on five major domains: knowledge, barriers, facilitators, practices, and dissemination. The majority of themes focused on barriers and knowledge. Barriers included lack of health care information access due to language and communication challenges, financial constraints, and stress. Inconsistent knowledge emerged from many key areas of cardiovascular health.Conclusions: The study outlines key themes for improving cardiovascular health knowledge and perceptions among Deaf ASL users. Findings suggest the importance of providing health educational programs and information in ASL to maximize understanding and minimize misconceptions. When caring for Deaf ASL users, providers should take extra effort to ask about cardiovascular risk factors and confirm patients' understanding of these factors. (C) 2011 Elsevier Inc. All rights reserved.