Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics
Unmet needs in community-living persons with dementia are common, often non-medical and related to patient and caregiver characteristics
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DOI：
10.1017/s1041610218002296
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发表时间：
2019-11-01
影响因子：
7
通讯作者：
Samus, Quincy M.
中科院分区：
文献类型：
--
作者：
Black, Betty S.;Johnston, Deirdre;Samus, Quincy M.
目的：了解痴呆症患者（PWD）及其照顾者的哪些特征与未满足的需求相关，可以为解决这些需求的策略提供信息。我们的目的是确定的百分比PWD有未满足的需求和未满足的需求在PWD.Design的显着相关性：横断面数据进行了分析，使用双变量和分层多元线性回归分析。设置：参与者住在巴尔的摩，马里兰州和华盛顿特区郊区。参与者：一个样本的646个社区生活的PWD和他们的非正式照顾者参加了在家中评估痴呆症相关的需求。测量：未满足的需求，确定使用约翰霍普金斯痴呆症护理需求评估。未满足的需求的相关性，确定使用人口统计学，社会经济，临床，功能和生活质量的特点，PWD和他们的careers.Results：PWD的平均10.6（4.8）未满足的需求的43个项目（24.8%）。未满足的需求最常见于家庭/个人安全（97.4%），一般医疗保健（83.1%）和日常活动（73.2%）领域。更高的未满足的需求显着相关的非白人种族，教育程度较低，认知功能较高，更多的神经精神症状，生活质量较低的PWD，并有照顾者教育程度较低或谁花了更少的时间/周与PWD.Conclusions：未满足的需求是常见的社区生活的PWD，大多数是非医疗。家庭痴呆症护理可以通过关注护理对象和护理人员来识别和解决PWD未满足的需求，使PWD能够安全地留在家中。
Objective:Understanding which characteristics of persons with dementia (PWD) and their caregivers are associated with unmet needs can inform strategies to address those needs. Our purpose was to determine the percentage of PWD having unmet needs and significant correlates of unmet needs in PWD.Design:Cross-sectional data were analyzed using bivariate and hierarchical multiple linear regression analyses.Setting:Participants lived in the greater Baltimore, Maryland and Washington DC suburban area.Participants:A sample of 646 community-living PWD and their informal caregivers participated in an in-home assessment of dementia-related needs.Measurements:Unmet needs were identified using the Johns Hopkins Dementia Care Needs Assessment. Correlates of unmet needs were determined using demographic, socioeconomic, clinical, functional and quality of life characteristics of the PWD and their caregivers.Results:PWD had a mean of 10.6 (4.8) unmet needs out of 43 items (24.8%). Unmet needs were most common in Home/Personal Safety (97.4%), General Health Care (83.1%), and Daily Activities (73.2%) domains. Higher unmet needs were significantly related to non-white race, lower education, higher cognitive function, more neuropsychiatric symptoms, lower quality of life in PWD, and having caregivers with lower education or who spent fewer hours/week with the PWD.Conclusions:Unmet needs are common in community-living PWD, and most are non-medical. Home-based dementia care can identify and address PWD's unmet needs by focusing on care recipients and caregivers to enable PWD to remain safely at home.