Polycystic Ovary Syndrome: Perceptions and Attitudes of Women and Primary Health Care Physicians on Features of PCOS and Renaming the Syndrome
Polycystic Ovary Syndrome: Perceptions and Attitudes of Women and Primary Health Care Physicians on Features of PCOS and Renaming the Syndrome
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DOI：
10.1210/jc.2013-2978
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发表时间：
2014-01-01
影响因子：
5.8
通讯作者：
Boyle, Jacqueline
中科院分区：
文献类型：
--
作者：
Teede, Helena;Gibson-Helm, Melanie;Boyle, Jacqueline
背景：多囊卵巢综合征（PCOS）是一种未被充分认识的、常见的、复杂的内分泌疾病。PCOS这个名称是一个误称，并且已经有人呼吁改变以反映更广泛的临床综合征。目的：这项研究的目的是确定妇女和初级卫生保健医生对PCOS关键临床特征的看法以及对该综合征当前和替代名称的态度。设计：我们利用设计的问卷进行了一项横断面研究。设置：参与者是通过专业协会、妇女健康组织和PCOS支持小组在澳大利亚各地招募的。参与者：57名PCOS妇女和105名初级保健医生参加了这项研究。对PCOS关键临床特征的认知以及对当前和替代综合征名称的态度进行了调查。86%的PCOS患者和90%的初级保健医生认为月经不规律是PCOS的一个关键临床特征。在这两组中，60%的人也认为激素失衡是一个关键特征。在患有PCOS的女性中，47%的人错误地将卵巢囊肿视为关键，48%的人认为目前的名称令人困惑，51%的人支持改变。大多数初级保健医生同意，这个名字是混乱的（74%），需要改变（81%）;然而，意见具体的替代names divided.Conclusions：名称“多囊卵巢综合征”被认为是混乱的，有普遍支持的变化，以反映更广泛的临床综合征。强烈建议初级卫生保健医生和消费者的参与，以确保替代名称增强对综合征及其复杂特征的理解和认识。
Context: Polycystic ovary syndrome (PCOS) is an under-recognized, common, and complex endocrinopathy. The name PCOS is a misnomer, and there have been calls for a change to reflect the broader clinical syndrome.Objective: The aim of the study was to determine perceptions held by women and primary health care physicians around key clinical features of PCOS and attitudes toward current and alternative names for the syndrome.Design: We conducted a cross-sectional study utilizing a devised questionnaire.Setting: Participants were recruited throughout Australia via professional associations, women's health organizations, and a PCOS support group.Participants: Fifty-seven women with PCOS and 105 primary care physicians participated in the study.Main Outcome Measures: Perceptions of key clinical PCOS features and attitudes toward current and alternative syndrome names were investigated.Results: Irregular periods were identified as a key clinical feature of PCOS by 86% of the women with PCOS and 90% of the primary care physicians. In both groups, 60% also identified hormone imbalance as a key feature. Among women with PCOS, 47% incorrectly identified ovarian cysts as key, 48% felt the current name is confusing, and 51% supported a change. Most primary care physicians agreed that the name is confusing (74%) and needs changing (81%); however, opinions on specific alternative names were divided.Conclusions: The name "polycystic ovary syndrome" is perceived as confusing, and there is general support for a change to reflect the broader clinical syndrome. Engagement of primary health care physicians and consumers is strongly recommended to ensure that an alternative name enhances understanding and recognition of the syndrome and its complex features.